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    Joy asked a questionBreast Cancer

    Has anyone had problems with reconstruction on skin that is radiated?

    7 answers
    • Joy's Avatar
      Joy

      I first started doing reconstruction almost two yrs ago. After lots of complications I am still trying to complete what I started. To make a long story short I have had tissue expanders and implants put in but radiated side didnt work. Had to take the implant out. I had tram surgery in dec that resulted in necrosis at the incision line. This created a wound. I find it interesting that many surgeons advise against having implants. It is so frustrating to pay medical bills for extra surgeries and wound care

      over 2 years ago
    • MLT's Avatar
      MLT

      So hope you are healing now. Feel bad for all those having implants, then having to have more reconstruction. One PS wanted me to get implants, so I crossed her off my list!

      over 2 years ago
    • Cece423's Avatar
      Cece423

      I had tissue expanders swapped for silicone implants about 5 weeks before starting radiation treatments, which I finished exactly a month ago. My skin was extremely red, burnt, painful and then peeling, but I can say that today it is almost back to normal. I used every possible lotion, oil and aloe product I could find! The radiated implant side is much firmer and tighter-feeling, but the skin looks good. I thought radiation was torture, I'm so sorry you're about to have to do this. Take care.

      over 2 years ago
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    Joy asked a questionBreast Cancer

    I am curious how many people had problems with radiated skin

    12 answers
    • Samcharlie's Avatar
      Samcharlie

      I had a lumpectomy, chemo and 35 radiation treatments including 1 boost treatment. I was severely sunburned, used every cream prescribed and was able to continue wearing a bra throughout treatment. My radiation onco had me put the cream on 3 times per day. The creams were different combinations of samples she had plus Aquaphor. The healing started as soon as the treatment ended. I am very pleased with the skin color - I think it is normal and the surgeon says it is the best he has seen. Good luck!

      over 2 years ago
    • jojosmom's Avatar
      jojosmom

      I had a little burn. Once I started the boost I got really burned and started peeling. Tried the creams and everything else they recommended. Wound up in ER with fever. Was admitted, they discovered
      I had a staph infection inside my breast. Had surgery to drain it. Had 3 drain tubes. What I can remember was not pleasant. After tubes removed, had to pack incision for 4 weeks. Was not a
      fun time.

      over 2 years ago
    • Joy's Avatar
      Joy

      Thanks for all of your feedback. I should have been more specific. My question should have been problems with radiated skin after having breast reconstruction. I was curious to see if there were a significant amount of people who have had some of the same problems as me. I am going on two years since first starting the reconstruction. This is the short version (LOL): Tissue expanders in June 2012, staph infection July 2012, finally got expanded and had surgery for implants on Decemer 2012, infection in February 2013 where they took implant out on radiated side and put another one in, skin opened up a few weeks later and had to have the implant taken out. I waited several months until Dec 2013 when I had tram surgery. I ended up having necrosis at the incision line due to stomach being attached to radiated skin (I was told I didn't have enough skin). Surgery in January 2014 to clean it up which created a wound, since have had wound vac and am now in hyperbaric oxygen therapy which is going well so far. I have been thinking that women and men need to know about complications before considering doing reconstruction on radiated skin. Thanks for listening!

      over 2 years ago
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    Joy asked a questionBreast Cancer

    Does anybody know if you can get assistance with medical bills after having mutliple problems with reconstruction?

    • Brook28's Avatar
      Brook28

      I would start by calling your hospital's accounts payable department and asking if there are any organizations they can refer you to also - most definitely contact the Susan G. Komen foundation. This is part of what they do. Another resource might be contacting your county health department to see if they can give you any information or referrals. Good luck with everything!

      over 2 years ago
    • lilymadeline's Avatar
      lilymadeline

      Immediately ask your hospital or oncologist for a social worker, mine helped me tremendously finding sources available for charitable help and also she got me approved for my hospitals charity care program.
      And there are a lot of organizations to help breast cancer patients, they are all overwhelmed with requests but you might still have some luck. But also call or email the Cancer Legal Resource Center or CLRC in Los Angeles California, because reconstruction is covered by law now in nearly all states, so your insurance probably has to pay for it even if they are trying to get out of doing that now. They are a volunteer organization so they are slow to respond sometimes, so be patient but they might be able to help or at least point you in the right direction.
      And of course Google and go on line to find current breast cancer organizations, you need to spend time on this. I did myself but it paid off eventually. And be aware that new charities come up overnight and charities also often go out of business, the ones who helped me are mostly gone now, except my hospitals charity program. Good luck and best wishes!

      over 2 years ago
    • AmyJo's Avatar
      AmyJo

      I think the American Cancer Society sometimes can help with that, or at least maybe they could steer you in the right direction. Or ask your doctor, sometimes they know how to deal with it too.
      I'm so sorry you have to go through that on top of cancer. That's a lot on your plate.
      God Bless!!

      over 2 years ago
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