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    JoyMisty wrote on DMACKUK's wall

    I sincerely hope your treatment is working for you. Are you able to share what your treatment consists of?

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    User: DMACKUK

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    JoyMisty shared an experience

    Other Care: I attend any and all blood cancer, stage 4, etc. support groups I can. This is very helpful as the other patients are really the only ones who truly "get it."

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    JoyMisty shared an experience

    Decision Point (Other): Because there is no standard of care for MCL, I will have to decide which treatment protocol to take a chance on, basically it seems all MCL patients are on a clinical trial as no one treatment has been shown to be effective for all. Frustrating, uncertain, and frightening. I hope by the time I need treatment (tomorrow, next week, month, year?) the researchers will have been able to discover how to treat. I know they are doggedly working at this. Good luck, researchers, and....HURRY!

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    JoyMisty shared an experience

    Loss (Body part/function): Besides losing all the body parts that make me a girl, I feel a tremendous loss of my health. I am angry at having to deal with a fourth cancer, with this one having no standard of care and no cure!

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    JoyMisty shared an experience

    Radiation (External radiation ): I was very fatigued the about last two weeks, some skin burn.