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    JStrong wrote on po18guy's wall

    Hi there. I have a question for you! My brother has NK T-Cell lymphoma which I know is different than your diagnosis but was curious if you have yet completed your treatment yet? My brother is completing his treatment and is getting ready to have a bone marrow transplant and was wondering if this was in the plans for you as well.

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    User: mitch

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    JStrong wrote on mitch's wall

    Hi Linda! My little brother, Josh was also diagnosed with NK/T-Cell Lymphoma in December. He is also 23, will be 24 on 2/22. I see that your son is in remission, which was SO ENCOURAGING to read. My brother has only completed one cycle of chemo and is not feeling so great. He is back in TODAY for cycle 2 and I am fearful that he is going to keep going downhill as the treatments progress. I would love to hear your story. We can do this over email if you prefer but I figured there might be others out there that would be interested as well. It is such a rare diagnosis that it is hard to find anyone that can relate. Thank you so much for reaching out to me. I could really use the support. Plus it is nice to share the information with my parents (who aren't very computer savy) that there are others out there that are doing well. I can't even believe the age is the same.

    Jen

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    JStrong asked a questionNon-Hodgkin Lymphoma (NHL)

    Second Opinion? Necessary or Hassle?

    12 answers
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      JStrong

      I really appreciate all of your responses. Just to respond to a couple of things. The "friends" that informed me to get a second opinion were cancer survivors, so being that I had never dealt with this I am going in blind, as is the rest of the family. My brother is very much the type that he is just doing what anyone tells him to do, he doesn't seem to be ready to make decisions for himself at this point. I am pretty sure he is still in shock about the whole thing and just wants to survive. He is currently getting treatment at MD Anderson Cancer Center in Orlando, FL which according to the link that Harry posted the hospital is one of the best in the country (or at least a connection with). We had a second opinion scheduled with Moffitt in Tampa but had to cancel. My brother's response when asked about continuing with the second opinion is "well...if you guys think it's important I'll do it, but its a pain in the butt!" So as his sister I worry and only want to make sure that the doctors made the right choice and do whatever it takes to save my brothers life. So while I respect my brother's opinion about it being a pain in the butt, I don't want to lose my brother either! I feel more confident about sharing this information with my brother and hope that he chooses to continue JUST IN CASE someone made a mistake. THANKS AGAIN!! :)

      over 4 years ago
    • Harry's Avatar
      Harry (Best Answer!)

      The best cancer hospital in the country, according to US News and World Report, is MD Anderson in Houston. I suppose the MD Anderson in Orlando is connected to the one in Houston, but then again, Hillside Hospital on the east side of Cleveland is connected to the Cleveland Clinic, but it is not the same thing at all (you can ask my mother about that). You want the real deal.

      Given what you describe, I think I would tell him that, yes, it is important and get him to Moffitt. It may be a pain, but it is a worthwhile pain. Given what @po18guy has been saying about T-cell lymphomas, I would want to be certain that he was being seen by an oncologist with T-cell lymphoma experience.

      over 4 years ago
    • grandmafran's Avatar
      grandmafran

      I strongly recommend a second opinion to anyone who asks. I have too many stories of missed diagnoses and treatments over the years. It never hurts to get a fresh set of eyes when your life is in the balance. I had a second and third opinion and went with my original oncologist. My dad was diagnosed with lung cancer and after a massive surgery it turned out not to be cancer at all. A good friend was diagnosed with lung cancer and then discovered she had ovarian cancer that had spread to her lung.
      I don't mean to scare you and chances are good that he is in good hands but it is obvious how much you love him so pursue it with him and know that the decision is in his hands. There are great cancer centers that deal with rare cancers on a daily basis. He doesn't need to be treated by someone who doesn't have experience with his cancer. Bless you all and good luck to your family and brother.

      over 4 years ago
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