• jtu248's Avatar

    jtu248 started following

    User: CancerNews

  • jtu248's Avatar

    jtu248 started following

  • jtu248's Avatar

    jtu248 asked a questionColorectal (Colon) Cancer

    Crazy/Frequent Bowel movements after ileostomy reversal

    6 answers
    • booboo's Avatar
      booboo

      I did not have a j-pouch. After my ileostomy takedown surgery I had exactly what you describe. It took me about 6 months before it slowed down at all. I tried increasing my fiber intake and that helped a little, but really it just took a long time. Hang in there, eventually it will return to something like normal, though it will probably never be the same as it was before treatment.

      about 4 years ago
    • papabill's Avatar
      papabill

      Hi Jack, Been there, done that. Rectal carcinoma. Pre-surgical chemo/radiation. Colo-rectal surgery. Ileostomy.. Reversal. Then !2 sessions of follow-up chemo (FolFox). I was were you are now. It took me a l-o-n-g time to see any real progress from the OMG many times a day bathroom visits, including accidents as caught short before any slow but positive changes in bowel pattern took place. Even wore Depend briefs, especially at night. Gradually after many months movements became more solid, though still frequent but to finally a point were felt secure abandoning Depend briefs (except at night) and even venturing out -- though always pre-planned in mind where closest bathrooms would be; local non-mall department stores, McDonalds, etc. As with others and as recommended by my surgeon, took and still take Metamucil and a 1/2 Imodium whenever bowels became loose or I know will be out and about for several hours.

      Now still take the Metamucil and Imodium (as needed) and latest pattern is that about 75% of time I have frequent bowel callings about once a day -- time can vary. Even some days nothing. Each incident usually means several visits in anywhere from three to five times within 30- 45 minutes – most times have feeling of need and can now avoid the OMG cannot hold back incidents, then all quiet with sometimes several other controlled movements throughout day. But for the most part no more "accidents" or need for Depend and no night time incidents that are not contollable and infrequent now. Getting a full night of uninterupted sleep was a milestone. As others have noted, it takes time as now only after one year I have seen this latest progression toward new "normalcy." Again, my surgeon and GI stated will take about two years from end of all treatment/chemo before remaining colon "learns" to now serve as the complete rectum. No j-tube either. I am hoping even better bowel days ahead. Also advise keep up with the male Kegel sphincter exercises and be patient and watch for gradual, but good changes. Watch diet at this stage, avoid carbonated drinks, foods that produce gas, etc. All very important. If can provide any other input, please do not hesitate. Invest in toilet paper and keep the faith.

      about 4 years ago
    • LauraJo's Avatar
      LauraJo

      I am 18 months out from being re-connected at this point, and am probably about as good as I am going to get, and that is SO much better than at first. I no longer take metamucil but recently added a probiotic daily, and think that I have finally turned a corner. I generally go right after I get up in the morning, and once in the evening, and the stool is usually formed. I wear a mini-pad daily (guys, you might give those a try) , and most days don't need it, but mentally feel more comfortable. I don't remember the last time I took immodium. I am still trying to find out what things trigger the occasional bad bouts....so far, fatty foods seem to be a trigger, oddly enough spicy food is NOT a bother, and possibly alcohol - the jury is still out on that one. But, at all times, it beats a bag, or being dead. :) Most days I forget that I am rebuilt. I hope that this point that things are starting to settle down for you.

      about 4 years ago
  • jtu248's Avatar

    jtu248 started following

  • jtu248's Avatar

    jtu248 asked a questionColorectal (Colon) Cancer

    Follow up care for rectal cancer-Stage 2 T3

    • Peroll's Avatar
      Peroll

      First you need to know what each test really does.

      The CEA blood test is a marker that can indicate active cancer, but there are a number of other things that can cause CEA to go up so it is not definitive. Usually they check CEA every 6 weeks when they flush your port (if you have one).

      A CT scan, like an x-ray sees different densities of 4tissue inside you. Cancer tends to be denser than surounding tissue, but again there are a number of other things that can cause denser tissue, so a CT scan is also not definitive. I have been getting CT scans every 3 months, which is considered normal for patients with recent active cancers. Once you are a couple of years clean then they will expand the interval.

      Colonoscopies actually look at the colon and can see cancer thus they are definitive for cancer in the colon but only see the colon. They are usually done at three year intervals. The real purpose of a colonoscopy is to find and remove precancerous polyps before they become cancer.
      If the CEA is elevated you will likely have a CT ASAP. If a CT scan shows something that looks like it could be cancer, what happens will depend on where it is and how big it is. They may just monitor it with another CT scan in 3 months or they may try and biopsey it to get a better idea of what it is.
      I hope this helps. If you have any questions about this let me know. Good luck!!

      over 4 years ago
  • jtu248's Avatar

    jtu248 shared an experience

    Procedure or Surgery (Colon surgery (colectomy or hemicolectomy))