Thank you so much for your note. I am so glad you are doing well, and on your way to 5 years. We are gaining strength in numbers.
I am so glad to meet so many strong survivors and fighters. Everyone here inspires me so much. May you continue to be well, and enjoy every day!
- Rockville, IN
- Member Since Sep 2012
Their Diagnoses (1)
- Survivor: Invasive Lobular Carcinoma
- Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 7 years ago, Female, Age: 69, Stage IV, HER2 Positive: No, ER Positive: Yes, PR Positive: Don't Know
- View this journey (5 Experiences)
judijudijudi wrote on ShuuQueen's wall
Just now checking my email. Thanks for your comment on my wall. Keep praying. I have stage 4 cancer. The cancer morphed from estrogen receptive to Her2/positive which is more aggressive and attacked my liver. I have started treatment with 3 types of chemo. 2 are specifically for this Her2 type. I was diagnosed with stage 4 at age 62. I have now made it to 67. Only about 16% make it past 5 years and I am soon to reach 5 years after diagnosis. I'm glad they found your cancer earlier. There's a good chance you can be cured while I cannot be. Pray for me and I'll be praying for you. Love, Judijudijudi
judijudijudi wrote on Crsp34's wall
Just wanted to say hello. I too am a stage IV breast cancer patient. I'm glad you're still going after 5 years. That's an inspiration to me. I was diagnosed in Aug 2009 so I haven't made 5 years yet but I'm doing well. There is one big difference between us and that is age. I am 65 diagnosed at 62. It breaks my heart to see someone like you, so young, fighting against this terrible disease. I pray for a cure so that you can have a nice long lifespan. Best wishes, Judi
judijudijudi wrote on helg1970's wall
Just saying hello. I'm 65. I was diagnosed in stage IV 3 years ago. I am doing well and would like to encourage you. After chemo, your life can get back to 'normal.' Mine has. I just saw my doctor yesterday. I complained of bone pain so he is going to have a bone scan done--it's been over a year. My current treatment (Faslodex) may no longer be working. However, there I quite a few more hormone therapies available. I know my doctor will do his best to keep me alive and to see that I have a good quality of life as well.
judijudijudi wrote on Suzzy's wall
Have you heard of Camp Bluebird, a semi-annual weekend retreat for adult cancer patients and survivors. I just attened my first and found it very uplifting and inspiring. It is sponsored by IU Methodist but you do not have to treat there to participate. It is held at Camp Campby which is south of Indianapolis just a few miles. For more info email [email redacted] or call her (Alexis Smith) at[phone number redacted].
judijudijudi wrote on asunnyday's wall
Have you heard of Camp Bluebird? It is a semi-annual weekend retreat for adult cancer patients sponsored by IU Methodist Hospital and held at Camp Camby which is near you. I just attended for my first time; it was very inspiring and uplifting. If you want more info on the camp, you can email Alexis Smith at [email redacted] or call her at[phone number redacted].
judijudijudi wrote on Tami's wall
Your posting on my wall did not mention taking Zometa. I am reading a book named "The End of Illness" by David Agus M.D. It is not strictly a cancer book, but Dr. Agus is an oncologist so he mentions a lot of examples that are about cancer. He quotes a study published in the NEJM in Feb 2009 about Zometa. Let me quote: "Those who received the bone-builder experienced a reduction in their recurrence of the cancer by 36 percent. Here's the stunning part: this particular drug doesn't even touch the cancer. This case demonstrates that if you change the soil (breast cancer classically metastiasizes to bone), the seed (the breast cancer cell) doesn't grow as well. The drug changed these women's systems, thereby having a marked effect on their cancer."
Tami, you definitely need to be on Zometa or its equivalent Reclast. It will make it hard for the cancer to make any headway in your bones. I have been on it since my diagnosis and it is only recently it has begun to give me unpleasant side effects. I plan to talk to the doctor about the frequency of infusions, but I will continue taking it because I want to survive. I will learn to mitigate the side effects as much as I can because the Zometa is so important.
I know you won't agree with me, but I consider you lucky as the disease hasn't metastized to soft tissue. All the oncologists I consulted said the disease progresses faster in the soft tissue. At my diagnosis, the cancer was not only in my bones, but also my stomach and colon, and later it went into my liver. The doctors who would give me a timeframe said I had 3-4 years. I just passed 3 years in August. The chemo got rid of the cancer in my liver. My stomach and colon seem to be working okay, no cancer activity. My pet scan showed only a little activity in my bones. Thanks to a combo of hormone therapy, chemo, and Zometa and a doctor that stays on top of my case, I have hope that I'll outlive the odds.
Hang in there, Tami. Talk to your doctor about Zometa.