• Julesmom's Avatar

    Julesmom shared a photo

    Wall_i_ve_learned_alot

    Having dealt with cancer for a few years now, I have learned a lot of this in this quote. Things will certainly change and we need those people in our lives that love us and support us.

    1 Comment
  • Julesmom's Avatar
  • Julesmom's Avatar

    Julesmom asked a questionBreast Cancer

    Is it normal to have bone and joint pain a few years out of treatments?

    • Bengal's Avatar
      Bengal

      Yes! I have osteo-arthtitis so it 's hard to judge how much of my debilitating bone and joint pain comes from that and how much from treatment. All I know is it's been much worse. I am about a year and a half beyond treatment. I was on anastrozole for a little over a year. I was so fatigued and stiff and achy that it was a lost year. I had no energy and every movement hurt. I made the decision to stop the anastrozole the end of August. Within days I felt more like myself. I tried a couple of other AI's and had a bad reaction. Right now I am not taking anything. I still have joint and bone pain but at a much more manageable level.

      about 1 month ago
    • ChicagoSandy's Avatar
      ChicagoSandy

      No bone pain for me, but joint pain in ankles, shoulders, and lumbar spine (pre-existing degenerative disk disease). Knees okay--they've been "bionic" since before bc. Sometimes trigger finger (but it's transient) and sore stiff knuckles. Some warn that the joint pain from AIs can be cumulative, but except for my back it's improved over the years (and a 50-lb. hard-earned weight loss has helped too).

      about 1 month ago
    • lynn1950's Avatar
      lynn1950

      Except for bionic knees, ditto ChicagoSandy. I lost 30 pounds. I am 7 pounds over my goal. My GP thinks completing AIs a little over a year ago has a lot to do with the weight loss.

      about 1 month ago
  • Julesmom's Avatar
  • Julesmom's Avatar

    Julesmom asked a questionBreast Cancer

    For the breast cancer patients/survivors, how often does this happen to you?

    11 answers
    • ChicagoSandy's Avatar
      ChicagoSandy

      Ever since high school I've had men sometimes "look me in the chest" instead of the eyes, because I've been "well-endowed" most of my post-puberty life. (And it ain't what it's cracked up to be--especially the upper backaches and gaping blouse buttons). So it's really nothing new.

      My post-bc experience has been more along the lines of, when the subject comes up (usually in the context of medication, compression-wear or osteopenia isues), the response is "Oh, I'm so sorry." (Sometimes when I'm wearing a patterned sleeve in-flight, people will compliment me on my "ink"). I appreciate the concern & empathy, but what does anyone else have to be "sorry" about when it comes to OUR cancers? Sometimes I'm asked who my plastic surgeon was (having had a small tumor removed from a large breast, I didn't need oncoplasty), or they marvel "gee, your hair grew back really fast!" (I didn't have chemo either).

      I always end up having to reassure THEM I'm fine!

      about 1 month ago
    • Carool's Avatar
      Carool

      I guess I’ve never had that reaction (or never noticed it) because I tend to preempt it by saying, “I still have my breasts,” immediately after telling someone that I had breast cancer.

      about 1 month ago
    • gpgirl70's Avatar
      gpgirl70

      I keep expecting to have that reaction because I don’t have breasts but haven’t noticed any glances. The lack of glances at my chest has been empowering. I really learned to be comfortable with my post-mastectomy body.

      about 1 month ago
  • Julesmom's Avatar

    Julesmom shared a photo

    Wall_i_am_still_standing

    For all the Sisters that have fought or still fighting off breast cancer.