• Junkadams' Avatar

    Junkadams asked a questionOvarian and Fallopian Tube Cancer

    Maintenance. Drugs

    4 answers
    • carm's Avatar
      carm

      Hello, I'm an oncology nurse and I have patients on rubraca who are doing very well. I have had patients who started on Lynparza first and then switched to Rubraca and got better outcomes. Best of luck to you.

      6 months ago
    • Llk's Avatar
      Llk

      I will likely be on a maintenance clinical trial that has Rubraca and nivolumab. I am BrCA negative. Almost all of us go into maintenance on a “wat and see” protocol. This protocol I’m looking at is called ATHENA. I’m at Yale in CT, but I know it is also at multiple other sites.

      Both Rubraca (oral med) and Nivolumab (IV) are loaded with side effects. Docheck that out!

      Best of luck to you for a lengthy remission!

      6 months ago
    • Igotthis2's Avatar
      Igotthis2

      I was on Rubraca last year (april-nov). It was one of the easiest treatments I’ve had. There was some nausea in the beginning but that went away. I had to be very careful of the sun. My skin burned terribly with just the slightest exposure. My ca125 finally rose to a point where we had to make a change. Moved on to Zejula for 6 months and now I am just starting a clinical trial. I’m 5 years out from diagnosis...stage 3c. This is the 7th drug regimen that I’ve been on, but I’m still here.

      5 months ago
  • Junkadams' Avatar

    Junkadams asked a questionOvarian and Fallopian Tube Cancer

    Rubraca

    • GregP_WN's Avatar
      GregP_WN

      One way of finding information on the site is to click on the experiences tab at the top of the page, then enter the name of the drug or procedure you want more information on in the search box. You will then get all of the conversations, questions, or other posts that have been made on the site about that drug.

      6 months ago
    • Melbirk's Avatar
      Melbirk

      I am currently taking Lynparza because I am BRCA2 positive and had a positive outcome from chemo. I have only been on it for a few months but my CA125 level remains under 10 and the side effects aren’t bad (fatigue and joint pain).
      Good luck!

      6 months ago
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    Junkadams started following

    Question: Rubraca

  • Junkadams' Avatar

    Junkadams asked a questionOvarian and Fallopian Tube Cancer

    Recurring ovarian cancer

    7 answers
    • Julia52's Avatar
      Julia52

      Avastin: High blood pressure. I was put on high pressure medicine. One time 190/120 and had to go to ER. Bloody noses and sores in nose and sinus. I’m still dealing with sinus issues. In January I had a perforated bowel and had emergency surgery. 3 days in ICU and 2 days on a respirator. 8 days total. If you have had bowel surgery and mine was over a year prior, you have 2 to 3 percent change of a perforated bowel. I’m just on doxil now. I had mouth sores and blisters on my feet. The Magic mouthwash took care of the sores and during future infusions I iced my feet and chewed ice chips and used cream like bag balm on my feet. No more issues. It can damage your heart. (doxil). I have 2 more treatments. I have been told it is slow working. Will know in June if it worked.

      7 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      @Julia52, thanks for refreshing my memory- it is Magic Mouthwash .

      7 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am sorry that you are facing a recurrence. I was on Avastin when I was first diagnosed and it made me very sick. I don't think it affects most people that way, but I experienced nausea, vomiting, constipation, and extreme fatigue. I didn't have the high blood pressure some do.

      I never took Doxil, but if that is the same as docetaxel, my first oncologist said it was harder on the body than the carboplatin I got at first. I chose to go into a clinical trial instead.

      Wishing you the best of luck.

      7 months ago
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  • Junkadams' Avatar

    Junkadams asked a questionOvarian and Fallopian Tube Cancer

    Ovarian cancer

    5 answers
    • Horsed2's Avatar
      Horsed2

      Yes and had immediate reaction to it. Tried slower infusion and still reaction. Turned bright red, fever, itched and saw bubbles.

      8 months ago
    • kalindria's Avatar
      kalindria

      Me! I had it in combination with Carboplatin. It made me super sensitive to sunlight and heat and caused me to have really dry itchy skin and skin discolorations which are still there nearly a year later. However, it worked for my recurrence and there weren't any other major side effects.

      Let me know if you have questions.

      8 months ago
    • kalindria's Avatar
      kalindria

      Oh yeah.. I just remember, you're not supposed to wear anything tight or binding as it can cause huge skin irritation problems. No tight bras, undergarments, etc. My oncologist told me a horror story about an elderly patient who insisted on wearing a girdle and lived to regret it.

      8 months ago