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    jyh5YR2Free asked a questionOvarian and Fallopian Tube Cancer

    Anyone have experience with lympedema after surgery and chemo?

    • derbygirl's Avatar
      derbygirl

      I have bilateral lower extremity lymphedema and can tell you it's a pain in the neck. Lymphedema will never go away if the lymph nodes were removed during surgery. You can also have this condition with ineffective lymph nodes because their job is to move fluid through your body. There are several ways to treat it and control it and it's not a painful process. First there are diuretics that your doctor can prescribe that will force fluid out of your body. The most common is Lasix. Another way to treat lymphedema is by wearing compression stockings. You can buy them at the store or you can have your doctor send you to a lymphedema specialist in your area that can provide them. They also can give you something to wear called tub-a-grip which are basically compression sleeves that you wear on your legs. The next step to treat this is to have your legs wrapped. The lymphedema specialist would wrap the affected area with several layers of wrap with each one getting tighter so it can force the fluid through your body. The way I am treated is with pneumatic pumps which are basically long blue sleeves that I put on and then I turn the pumps on and they gradually massage the fluid back through my body. Because the pumps do this more powerfully then the other ways, they have to be used carefully because you don't want the fluid to get to your heart too quickly if you have heart issues. You can do several things as well by elevating your legs when you sit but make sure your feet are above heart level. Also moving and exercise is great because it makes the fluid move through your body. I hope this helps explain this better for you. Take care

      over 4 years ago
    • Whitey61's Avatar
      Whitey61

      Compression sleeves help I hear...Google lymphedema at Memorial Sloan Kettering , I read interesting article about a treatment offered there...Best of luck

      over 4 years ago
    • Shoreline's Avatar
      Shoreline

      I am ridiculously late in responding and hope you have sought out and found quality Lymphedema (LE) care. There is no known current cure. A couple of different surgeries are possible depending on varying factors with results also varying. Find a doctor with LE knowledge, who can refer you to a surgeon. A decision by you that needs to be well researched! I have an excellent doctor in Boston who is just not a believer in the surgeries, but he offered referrals to me......I am still on the fence. have had LE for 2-3 years following uterine cancer. Lasix was not prescribed due to the detrimental effects of Lasix to LE patients. The medical community at large is still woefully lacking in LE diagnosis and care. I pray you have found a Certified LE therapist that can help you manage this disease with proper care, stockings/sleeves/garments, whatever your needs are. LE is a monster as far as I am concerned. Sorry that this post is disjointed. There are some good message board posts on Inspire.com regarding LE as well.

      almost 4 years ago
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    jyh5YR2Free asked a questionOvarian and Fallopian Tube Cancer

    Marriage issues after cancer??

    7 answers
    • Songwriter's Avatar
      Songwriter

      Some Spouses JUST can't take it anymore. The did the right thing for awhile but wear out. ALSO IF the marriage was rocky before it gets more rocky after treatment.

      I think some spouses see what cancer does and is like and doesn't want to be around it.....They are scared that they might get it and it freaks them out. I think that some people get psychotic and may think it's contagious.....Just a freaking mess...I HATE cancer and all it's manifestations...

      over 4 years ago
    • DebF's Avatar
      DebF

      Ive thought often about this. How can I make it easier on my significant other when I have cancer? I don't won't to over burden him.

      over 4 years ago
    • meyati's Avatar
      meyati

      My husband considered himself my protector-the knight on a white horse. A med gave me a seizure-gran mal- He went into the doctor and threatened to beat the living c-rap out of the doctors. The doctors became more conservative and respectful.

      He finally couldn't cope. After the divorce-if he heard that I had a problem-the kids -He'd rise to the occassion and charge in-fix it-and go back.

      over 4 years ago
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