• petieagnor's Avatar

    petieagnor wrote on Kalee's wall

    Welcome, Kalee. I also had my BC come back after 10 years. Really sucks. I'm 3 yrs out from my dx & seem to be doing real well of this chemo. I hate the hormone blocker more. We're all here to offer whatever you need. I've found great support.

    2 Comments
    • Kalee's Avatar
      Kalee

      Thank you:) You're right, it does suck, see the hormone blocker had zero affect on me (I only had 4% positive so that was just a precaution after treating for triple negative) What chemo are/were you doing? It seems that insurance is going to ok my chemo, I start tomorrow......what kind of BC did you have, were you positive or triple negative like me? What chemo did you have first and second time? Thank you so much:)

      7 days ago
    • petieagnor's Avatar
      petieagnor

      I have Stage IV Metastatic Breast Cancer; triple positive. I'm on Ibrance now, my 7th chemo drug. So far, my insurance has picked up the tabs. I really don't dwell on what I've taken that hasn't worked. Everyday, I'm thankful for where I am.

      7 days ago
  • Kalee's Avatar
  • Kalee's Avatar

    Kalee wrote on Dawsonsmom's wall

    Good Morning, I'm so sorry that you had the experience of being diagnosed with BC, as I have....BUT....I think you will do fine with the meds that are being offered to you. I am triple negative, with 4% positive, so we treated the negative, but i still take the femara and fosamax to keep my bones from dissolving and have zero side effects from the femara...now the fosamax for me, just makes me draggy for a couple days....you may want to go ahead and consider taking them to see how they make you feel.....are you going to do surgery at all??

    2 Comments
    • Dawsonsmom's Avatar
      Dawsonsmom

      Yes, I had bilateral mastectomy on 8/13/19 and am a little over a week from getting to take the surgical bra off!! My bc was ER+ PR+ HER2- with no metastasis. Thank you so much for sharing your experience with the femara. It’s nice to know there really are people who have no negative side effects. I am so glad you are having a positive response and it is encouraging to hear! Thanks again.

      8 days ago
    • Kalee's Avatar
      Kalee

      you are so welcome, I am so glad that I could help. If you have any questions at all, just ask. It sounds like you are doing well after surgery which is fantastic!

      8 days ago
  • GregP_WN's Avatar

    GregP_WN wrote on Kalee's wall

    Welcome to the WhatNext network! We are happy you found us but sorry for your reason to be here. There are a great bunch of people here that are willing to coach you through your issues that will come up. It's good to know that other people have been through exactly what you are facing now and have gone on to a good life afterward.

    If you have an issue you need help with, just post it on the questions page, someone will see it and add their own personal experiences to help you.

    If you see a question posted that you have experience with please at your answer to that question. We all have issues we need help with, you might have the answer someone needs.

    We wish you the best and if you have any questions about the website or how to post something drop us an email at contactus @ whatnext . com and someone will help you out.

    Greg P
    Community Mgr. / Social Media Mgr.
    3X Survivor

  • lujos' Avatar

    lujos wrote on Kalee's wall

    So sorry you’ve had a recurrence! Mine came back too, diagnosed in September of 2018, 4 years after treatment the first time. I was shocked, angry and devastated, all at once! I’ve since had a double mx, node clearance, chemo etc. Happy to chat if you need to talk!

    12 Comments
    • lujos' Avatar
      lujos

      Yes, xeloda for six months, now stopped to see what reaction is. It was actually not too bad, oral meds rather than infusion, which was handy. Made my peripheral neuropathy worse, though, which I’ve had ever since paclitaxel 4 years ago.

      8 days ago
    • lujos' Avatar
      lujos

      Wow, if you’ll be on that combo, it’s really cutting edge treatment!

      8 days ago
    • Kalee's Avatar
      Kalee

      You're right, the oral medication would be so much more convenient, but whatever it takes, oral, infusion, whichever works best to get it gone....oh no, it made your neuropathy worse? I'm so sorry....that bites.... Yes, it is cutting edge I hope they get the OK to do it....that would make my day....!!

      8 days ago
  • Kalee's Avatar

    Kalee shared an experience

    Oh No (Cancer is back/Recurred )

    4 Comments
    • TerriL's Avatar
      TerriL

      I am so sorry! We will support you as much as we can. There is a lot of knowledge on this site. I cannot imagine having to go through all this again.

      12 days ago
    • Bengal's Avatar
      Bengal

      The words we all fear and hope we will never have to hear. So, so sorry. Do what you have to do knowing you have a lot of folks rooting for you.

      11 days ago
    • HRtr's Avatar
      HRtr

      Unfortunately words that are always in the back of our minds. I wish you strength as you move forward <3

      10 days ago