• kalindria's Avatar

    kalindria wrote on Croppinshirl's wall

    Hi there, Croppinshirl. Welcome to WhatNext! Cancer is a crazy journey none of us planned but here we are. Looks like you've been on this journey for a while. I've been around the cancer block a time or two -- recurrent disease but still alive and kicking after almost 7 years. I was stage IV at diagnosis so I guess that's pretty good. Whatever, I'll take it. I'm happy to be here and happy to help you on your journey if I can. Sometimes even just knowing someone else has been there before you helps.

    Some time ago, I recorded a series of videos for WhatNext about my cancer journey. You may find them helpful or perhaps interesting. I've included a link at the end of this message should you wish to check them out. My hair is longer now (but still pink!) and I have a new knee but not much else has changed since I recorded the videos.

    WhatNext.com is a great place for everyone, from the newly diagnosed to those of us who've been living with cancer for some time - friends and loved ones too! While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.

    https://www.whatnext.com/video_pages/ovarian_cancer_videos_kalindria

    In the meantime, I'm here if you have any questions or want to chat.

  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on kalindria's wall

    Hi there lady. Very sorry to read about your ear problem and hope the surgery is a total success. See you still have your colorful hair , my hair is colorful too- still gray with white highlights. I have been wondering how you have been doing , I saw your post asking about another drug for treating your recurrence but I have never heard of it so no information to share. Also saw your post about unfriendling someone, don’t know how to do that either. Like your mask, my masks are varying designs and colors. Finally, the stores are buckling down and requiring patrons to wear masks upon entering the stores. Costco has been doing this for weeks and I do feel safer in a store when the percentage take of people wearing masks is high. Wish we had a magical spray that you could squirt and turn that virus visable. Much the same as far as weather down here- hot and dry. Paul and I are up in the mountains in the RV for ten days to reconnect with nature and lift the spirits. It is so different up here- kids running around, packed sites but people seem to all be practicing social distancing and I have not seen one mask. I will be putting mine on though when we go to the marina to resupply our larder. So my friend, As always, I wish you better days ahead . I will be keeping fingers crossed for all good things to come your way both with your ear and your treatments. Stay safe Teal Sister.

    1 Comment
    • kalindria's Avatar
      kalindria

      Surgery is over. Post surgery check went well. I'm healing and doing ear drops for the next two months!! The packing inside my ear will dissolve on its own, helped by the drops, and hopefully I will then be able to hear better. I will have another hearing test at the two month mark to get proof of success or failure but my surgeon was pretty confident. I was impressed at how little pain I had and how fast I seem to be healing. I am super tired but hey, I just had surgery, right?

      We're still managing the whole COVID craziness. I've started my own sourdough starter and am baking more bread than ever. It's a good thing we have air conditioning or I'd be miserably hot!

      A trip to the mountains sounds wonderful. Bet you and Paul really enjoyed that! Sending your both lots of love and hoping you stay safe and healthy. Better things are ahead.

      7 days ago
  • kalindria's Avatar

    kalindria shared a photo

    Wall_masked_me

    Just me in my mask. One of my masks.

    1 Comment
  • kalindria's Avatar

    kalindria posted an update

    Back in March, I ruptured an eardrum in the middle of a horrible sinus infection. Long story short, it has NOT healed and my hearing is impacted. Next week I'm having surgery to repair the membrane. First, I have to have a COVID test on Monday.

    I'm a little apprehensive as this surgery is close to my brain - cue the jokes! I'm accustomed to surgeries on abdomen and knee but this is different. Also, I'm not going to be allowed to blow my nose or sneeze after surgery! Those are such automatic reflexes, it will be challenging to remember to behave. On the other hand, I really want my hearing back to normal again!

  • kalindria's Avatar
  • kalindria's Avatar

    kalindria wrote on LegacyMom's wall

    Hi LegacyMom! Welcome! Cancer is a crazy journey none of us planned but here we are. Looks like you've been on this journey for a while. I've been around the cancer block a time or two -- recurrent disease but still alive and kicking after almost 7 years. I was stage IV at diagnosis so I guess that's pretty good. Whatever, I'll take it. I'm happy to be here and happy to help you on your journey if I can. Sometimes even just knowing someone else has been there before you helps.

    Some time ago, I recorded a series of videos for WhatNext about my cancer journey. You may find them helpful or perhaps interesting. I've included a link at the end of this message should you wish to check them out. My hair is longer now (but still pink!) and I have a new knee but not much else has changed since I recorded the videos.

    WhatNext.com is a great place for everyone, from the newly diagnosed to those of us who've been living with cancer for some time - friends and loved ones too! While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.

    https://www.whatnext.com/video_pages/ovarian_cancer_videos_kalindria

    In the meantime, I'm here if you have any questions or want to chat.