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    Carool wrote on kalindria's wall

    Hi, Kalindria. I just watched your blogs 1, 2, 4 (I'll find 3 and 5). Thank you for these. I look forward to watching many more.

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  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on kalindria's wall

    Hi lady. Knew you would opt for the clinical trial . I gather this would all start after your trip to Montana if you qualify? The treatment sounds very promising and nothing like getting a head start on the newest advancements. I will keep fingers crossed for you. Keep me updated.

    5 Comments
    • kalindria's Avatar
      kalindria

      If I could just twitch my nose and make things happen, the knee would be far down the list AFTER getting rid of my cancer!

      My five year anniversary is in October. But I have no doubt I'll make it. October 17 is the red letter day.

      I won't have reliable wifi in Montana but will take tons of photos. Just don't expect to see one of me in the hot tub! LOL

      I can't wait to see photos of your cruise vacation. It sounds fabulous! When we went to Scotland last year we decided, like you, that it was worth it to pay a little more and make sure we had the trip of a lifetime. I'm so glad we did. I have no doubt that you'll have a terrific time!

      10 days ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      I will be thinking of you on October 17th lady. Silly me, of course cancer would be the first casualty of a twitching nose. Disappointed no hot tub pictures forthcoming but then again, I would not want anyone taking pictures of me in the hot top either. Funny how we all, as survivors, remember our “ red letter day”, as indelible in our memory as our birthdays.

      9 days ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Lol- that is tub. I do not have any hot tops.

      9 days ago
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    kalindria asked a questionOvarian and Fallopian Tube Cancer

    Clinical Trial for Prexasertib

    9 answers
    • kalindria's Avatar
    • Kirvin's Avatar
      Kirvin

      I haven't heard of this drug, kalindria. Please let us know how it goes. I'm always looking ahead to that point where I may need to try a clinical trial. I was on lymparza for 8 months but it was too expensive to continue after Medicare kicked in since I'm no longer eligible for the co-pay assistance program (don't get me started on that topic!) so I just started on Avastin again. My tumor markers were starting to go back up again after only 8 months on lymparza. CT scan scheduled for Oct. 3. Making me a little crazy waiting to see if NED is gone again already. I hope all goes well with your clinical trial.

      10 days ago
    • kalindria's Avatar
      kalindria

      Kirvin - I did a Lynparza trial for 7 months. Then it stopped working. It IS an expensive drug but I was in a clinical trial and the manufacturer paid for it. At the time, they said it was about $14,000 per month. Yikes! It's sad that Medicare wouldn't just pay for it if it was working for you. Our system is broken. Good luck on your CT scan.

      I'll keep everyone posted on my progress -- assuming I get into the trial. I have a bunch of screening tests scheduled for as soon as I get back from my Montana ranch vacation.

      10 days ago
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    kalindria posted an update

    PET scan last week showed my tumors are stable. Yay!

    Next week I'm off for a vacation to a ranch retreat in Montana. I can't wait!