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    BoiseB wrote on kalindria's wall

    Hi Kalindria,
    I am exceedingly worried about you as you are right in the center of Coronavirus ground zero, Are you taking care of yourself? I have a friend who lives in Redmond. He fell on the ice during the last storm and had a TBI which he neglected That resulted in brain surgery. He was released from the hospital where the first victim died.
    I am in what I call a state of "functional panic" I listen to every press conference the governor gives, I am convinced that he is doing everything he can to manage this crisis
    I have gone into an obsessive washing mode. I carry hand sanitizer and Clorox wipes with me everywhere. I wipe every surface before touching it. The bus drivers think I am nuts, I also met my grocery delivery at the door with a Clorox spray cleaner. and I wiped down each grocery item before putting it away.
    I am thinking of you and sending you my thoughts and prayers

    2 Comments
    • kalindria's Avatar
      kalindria

      We’re fine. I don’t have much contact with people and I am diligent about cleanliness. It helps having a daughter who’s s germophobe - so I’m used to constant hand washing and hand sanitizer and not shaking hands.

      At my last chemo, three weeks ago, I asked my oncologist how worried I should be about the COVID-19 virus and she said it shouldn’t be too concerning as I long as I use common sense. Things may have changed but I see her tomorrow for another infusion. And on Friday, my daughter and I taking the train to California. We have a private roomette so we’ll be mostly isolated.

      Thanks for your concern. Please take care of yourself too! And one of these days we need to meet up! Maybe after all the Coronavirus nonsense calms down.

      26 days ago
    • BoiseB's Avatar
      BoiseB

      Thanks for the update. I am glad you are a clean freak. Very funny story. I have my groceries delivered for two years because I cannot walk through the aisles (fibromyalgia not cancer). So when I ordered hand sanitizer the were out of the unscented hand sanitizer so they substituted scented hand sanitizer, OK by me but it makes me cough and sneeze and everyone gives me the evil eye :)

      26 days ago
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    kalindria asked a questionOvarian and Fallopian Tube Cancer

    Helping the Helpless

    10 answers
    • kalindria's Avatar
      kalindria

      Thanks, MacFightsBack - sounds just like what I’m facing. Good advice. Thank you.

      about 1 month ago
    • po18guy's Avatar
      po18guy

      I believe in the transcendent. I believe in prayer. If you are a prayerful type, prayer accomplishes what words or other direct actions cannot. If you do not pray, ask someone who does to offer prayer for this person. Prayer and patience (patience comes from: to suffer without complaint).

      about 1 month ago
    • Marian333's Avatar
      Marian333

      Have you talked to the hospital social worker? One really helped us. I finally felt like someone really cared.

      about 1 month ago
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    kalindria wrote on IrishJane's wall

    Hello IrishJane - lovely name. Welcome! Cancer is a crazy journey none of us planned but here we are. Looks like you've been on this journey for a while. Sharing some of your experiences would probably help others, if you're so inclined. I'm another person who's been around the cancer block a time or two. I'm alive and kicking after more than 6 years and I was stage IV at diagnosis so I guess that's pretty good. Whatever, I'll take it. I'm happy to be here and happy to help you on your journey if I can. Sometimes even just knowing someone else has been there before you helps.

    Some time ago, I recorded a series of videos for WhatNext about my cancer journey. You may find them helpful or perhaps interesting. I've included a link at the end of this message should you wish to check them out. My hair is longer now (but still pink!) and I have a new knee but not much else has changed since I recorded the videos.

    WhatNext.com is a great place for everyone, from the newly diagnosed to those of us who've been living with cancer for some time - friends and loved ones too! While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.

    https://www.whatnext.com/video_pages/ovarian_cancer_videos_kalindria

    In the meantime, I'm here if you have any questions or want to chat.