• KancerKiller's Avatar

    KancerKiller asked a questionMultiple Myeloma

    Curious about if anyone has had salivary cancer here?

    9 answers
    • banditwalker's Avatar
      banditwalker

      #Molly72, sorry to hear that. Maybe they have made some strides in this kind of surgery. Plus, I am using Mederma cream. It is working great on the scar. I'm thinking of having a tattoo done on my neck seeings how I'm numb. Ha!

      10 days ago
    • SandiA's Avatar
      SandiA

      Hi! I had a parotid gland infection. It happened after some dental work. The side of my face was red and warm to the touch. Ended up in the ER followed by lots and lots of follow up appointment. It was pretty uncomfortable. They saw the infection on a CT scan. I was also running a fever. Fortunately it did clear up. But my main symptoms were swelling, redness, warm to the touch and a fever. Let us know how it goes.

      8 days ago
    • GregP_WN's Avatar
      GregP_WN

      Molly, my right side is numb from ear down to my Adam's apple. That was from the radical neck dissection I had on my right side.

      8 days ago
  • KancerKiller's Avatar
  • KancerKiller's Avatar

    KancerKiller asked a questionMultiple Myeloma

    I have found that if I break my days down into pieces it's easier to get through this. Have you thought of it this way?

    • GregP_WN's Avatar
      GregP_WN

      Interresting, 30 years ago when I first started treatments, I told myself something similar. Each treatment, or procedure I endured, I told myself that I can withstand ANYTHING for 15 - 20 - 30 minutes, so all I have to do is get through this, then it's going to be ok.

      about 1 month ago
    • Bonecrusher's Avatar
      Bonecrusher

      That's a good idea.

      about 1 month ago
    • JaneA's Avatar
      JaneA

      I didn't break it down for the minutes.

      But I did a countdown so to speak. I was to start off with six cycles of chemo. After Cycle 1, I said, "I'm 20% done." After 2, "I'm 40% done...until that part of my treatment was completed.

      Then I had 30 days of radiation. I counted down the same way - one week, 20% done.

      By focusing on what we've accomplished, we don't tend to worry so much about tomorrow. Best wishes for treatment success.

      about 1 month ago
  • KancerKiller's Avatar
  • KancerKiller's Avatar

    KancerKiller shared a photo

    Wall_its_ok_to_be_alone

    Do you ever feel like you just need to bug out and be by yourself? Sometimes I just don't feel up to certain appointments or talking with people, or being out anywhere. I just want to be at home, alone, with my miserable thoughts. Then, I'm good to go again.

    1 Comment
    • SandiA's Avatar
      SandiA

      I agree completely! Sometimes I just need some time to myself.

      about 1 month ago
  • KancerKiller's Avatar

    KancerKiller asked a questionMultiple Myeloma

    Have you spurged for something for yourself or your family after your diagnosis?

    6 answers
    • JaneA's Avatar
      JaneA

      After chemo and radiation, I was finally ready for a complex surgery leaving me with a permanent colostomy. Needless to say, I was unnerved. So I said to my husband, "We need to spend a few days at the beach. I need to walk on the beach, smell the sand, and burn those images in my brain." So we went to the beach - I walked and I walked and took videos of sandpipers and shrimp boats and big ships. And when left, I was ready to face what was termed "potentially curative surgery." Three and a half years afterward, I am still NED.

      3 months ago
    • GregP_WN's Avatar
      GregP_WN

      We haven't bought anything outrageous or anything like that. But, we don't worry about buying something, if you want it, get it. I agree that you need to provide for your basic needs and be financially prudent. But if there is a 100.00 item I or Donna want, we just get it. We tend to go to concerts a lot. She said a couple years ago that we should go, why not? We both enjoy it, I'm a musician so I really enjoy looking at the equipment, watching how the show is put together and all the little behind the scenes things that most people wouldn't notice. So yes, we do and I would say also that yes, we do it more now since my last dx.

      3 months ago
    • IKickedIt's Avatar
      IKickedIt

      I did the opposite, I became really practical. I was diagnosed right before my birthday and my husband bought me an iPad. They were new to the market and I perceived it to be an expensive, watered-down laptop. I made him take it back. He asked me what I wanted instead, and thinking that I'd be really sick and homebound for the next year or so, I decided it was better to update our powder room for friends who'd be coming to help me. Boy was I wrong...but at least I have a beautiful powder room now!

      3 months ago