• Karenb1's Avatar

    Karenb1 shared an experience

    Celebration (Cancer is shrinking): Randy had his first CT after his third round of chemo today. Dr.'s nurse called to let us know it showed a 40% improvement. It was the first good news we have had. We will get more in details on Wednesday before next round of chemo, but they wanted to call with the good news.

    1 Comment
    • JaneA's Avatar
      JaneA

      That is excellent news. My rectal tumor only shrank about 20% after 4 rounds, but that "good enough" to keep my treatment proceeding. I was dx in 2014. Keep the faith. This is the best possible news.

      about 1 month ago
  • Karenb1's Avatar

    Karenb1 asked a questionColorectal (Colon) Cancer

    oxaliplatin cold sensitivity

    7 answers
    • medale's Avatar
      medale

      Like @JaneA my cold sensitivy was pretty much immediate. After every infusion I could not drink/eat anything cold (felt like an electric shock and throat constricting) and needed gloves to get stuff out of the fridge. Had to stop the oxaliplatin after 8 treatments because of neuropathy, which for me was loss of sensation in finger tips and toes (hasn't gone away - check with doctor to see what can be done to reduce this as much as possible during treament).

      3 months ago
    • myb's Avatar
      myb

      My cold sensitivity started from chemo 1, but everyone is different. I did not have chemo induced peripheral neuropathy until one week after I finished my 12th round of chemo. I reacted to the Oxaliplatin during chemo 11 with flush face and hands and then the feeling of my throat closing which usually happens half way through the 12 rounds. Repeat everyone is different.

      3 months ago
    • Jayne's Avatar
      Jayne

      Ditto with JaneAn and others - my husband's reaction was immediate.

      3 months ago
  • Karenb1's Avatar

    Karenb1 started following

  • Karenb1's Avatar

    Karenb1 shared an experience

    Drug or Chemo Therapy (Chemotherapy): Today was day one of chemo. At the cancer center over 4 1/2 hours. Had labs followed by EKG, then iron infusion before chemo could begin. Not sure what we were expecting, but the nurses were great and the entire experience was so much Bette than we thought it would be. He came home with an infusion pump that he has to wear for 46 hrs. Having a hard time getting comfortable due to defibrillator on the left shoulder and port a Cath with infusion on the right shoulder. The center started off saying I would nit attend anymore chemo sessions with him due to vivid, even though the Dr. Said I could. That is until I asked if they were going to take care of his posting, because I take care for him. They quickly changed their minds, turns out, they don't want to handle that. The hospital had the same reaction when he had his abdominal aortic aneurysm stent surgery. I'm sure not all chemo sessions will be as good as this one, but we are grateful this one went so good.

    3 Comments
    • JaneA's Avatar
      JaneA

      They can give him a "fanny pack" for the pump to wear around his waist - that may or may not be more comfortable. I know that you are uncomfortable with the thought of not being with him during chemo. Don't worry about him. The chemo nurses are all awesome - they are responsive to their patients. All you have to do is hold up your hand or say HELP, and they will be right there. Even before the pandemic, my chemo center didn't allow anyone to stay with the patient for the entire time - but they were allowed to bring lunch or a snack or a quick visit. I'm glad that things went well. He'll be getting tired from the 5FU that's in the pump. The day of pump removal is usually the worse day in terms of fatigue.

      3 months ago
    • Karenb1's Avatar
      Karenb1

      JaneA - Is there anything to do to help combat the fatigue? They said for him to drink 4 - 16 oz. bottles of room temperature water a day. I think I'll number his bottles to keep him from cheating (he doesn't really care for any other drink that is room temperature). He is flushed now (no fever). I think it's probably due to the decadron they gave him yesterday.

      Due to where his ostomy is, he is unable to do the fanny pack. Also, they always allowed you to have a support person at his cancer center and once they realized he had the ostomy, they have gone from you can't come back except to bring him things TO you have to stay with him... Funny how that works when it's something they don't want to deal with. He does not do well alone with medical things (yes, he's spoiled).

      3 months ago
    • JaneA's Avatar
      JaneA

      Karenb1, there is nothing to combat the fatigue. Staying hydrated helps - keeps you from getting dizzy and helps clear the kidneys of the chemo. I hated the pump - when I was sitting on the sofa or at my desk, I always put it beside me instead of wearing it - I dropped it a couple of times when I'd get up and forget about it. The pump is tough and survived being dropped. I also slept with it kind of down beside my belly so the "sloosh" of the pump didn't disturb me.

      3 months ago
  • alivenwell's Avatar

    alivenwell wrote on Karenb1's wall

    The story about having both a tumor removal as well as a colectomy is very interesting. I had cancer in the lymph nodes that was about to spread around like wildfire. They were able to remove the tumor and surrounding colon tissue. I suspect that was what happened here. If he had a noncancerous blockage sometimes that can be prevented with drinking more water.

    1 Comment
  • Jayne's Avatar

    Jayne wrote on Karenb1's wall

    Very sorry to hear this, it's such an emotional roller coaster in the beginning, we all feel for you! As JaneA said, we are a wealth of information and experience here so hopefully we can help.