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    User: Lynne-I-Am

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    karinelsen asked a questionHead & Neck/Throat Cancer

    Healing agents from proton radiation

    7 answers
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      karinelsen

      I have 4 answers from above, but do not know how to respond to each (very different from FB!)
      @geekling - I am going to ask my dermatologist about black seed oil.
      @LiveWithCancer - i had 3 beams of proton radiation aimed near my eye and nostril. I did not have any issues with my teeth. I was able to work 1/2 day throughout the 1st 15 treatments, however the last18 treatments had me exhausted sleeping about 16 hours a day. My proton Dr. told me sleeping =healing.
      @barryboomer - 18 months later and 2 blood vessels in my nostril cauterized and 3 Avastin injections in my eye!!
      @GregP_WN - i too have a laundry list of side effects and life changes.How do I continue to get through this??? I have a great team of friends, coworkers, DRs, nurses and a great sense of humor.
      Please advise me how to better respond to each post..........

      about 1 year ago
    • geekling's Avatar
      geekling

      OMG, I do hope you escape side effects. I know there are lots of lawsuits regarding Avastin eye injections.

      I remember being tired. I still get that way sometimes. It was so exciting for me that I realized at a point in time I was strong enough to push a vacuum around so I thought is was a good time to use a gym. I did yoga and it was so difficult. I started out with 2 minutes on an eliptical machine and slowly worked to make myself stronger. It takes time.

      Best wishes to be able to happily go forward with your life.

      about 1 year ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      @kerinelsen, you did awesome with your response!! The only other thing you could have done is respond to each person in a separate post. Your way is wonderful!!

      I have never heard of Avastin treatments in the eye! I had Avastin (along with Carboplatin and Alimta) as my first-line treatment, but through my veins. It is scary to me just thinking about injections in my eyes!!!

      about 1 year ago
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