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    katethegreat shared an experience

    Procedure or Surgery (Surgery): Had craniotomy tumor resection for right frontal lobe. Able to have 90% of tumor removed surgically, told there would be a 100% chance I would wake up with weakness and inability to move left arm and leg due to location of the surgery. And an 18% chance this could be a permanent challenge after surgery. We planned on a 3 week hospitalization because of necessary rehab and therapy. I woke up with full movement. Getting staples removed from incision today.

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    katethegreat asked a questionBrain and Spinal Cord Tumors in Adults

    craniotomy and stereotactic radiation treatments

    • GregP_WN's Avatar
      GregP_WN

      Hi Kate, I done a search in our experiences page, located at the top of the page www.whatnext.com/experiences for Steriotactic radiation and this is what comes back. You can clik on the link and read what several WhatNexters have to say about it. Maybe this will help some.
      https://www.whatnext.com/experiences/search?utf8=%E2%9C%93&search%5Bquery%5D=stereotactic+radiation+&commit=Search

      about 4 years ago
    • carm's Avatar
      carm

      Hello, you might want to check on the abta website for these answers. Examples of Steriotactic Radio Therapy (SRS) are gamma and/or cyber knife. Normally, a perfect candidate for SRS would be a tumor that is spherical (like a ball) that is 2.5 cm or less in size (about an inch), and a tumor that is not touching a vital/sensitive nerve (like an optic or hearing nerve). A craniotomy is the most common type of surgery to remove a brain tumor. Your scalp is numbed, and you are asleep. The brain itself does not "feel" pain, so it can be done while you are awake if the surgeon believes it is necessary to minimize any risk. The portion of the skull that is removed for the surgery is then replaced. That is the difference between a craniotomy and a craniectomy where the skull portion removed is not replaced. Hope this helps, Carm.

      about 4 years ago
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    User: Rwillard801

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    katethegreat posted an update

    I married my husband 6 months ago.... was diagnosed 2 months ago.
    Feeling like there are all these "normal" experiences we need to put on hold until the major medical issues are behind us.

    * Any advise on coping? ( We do see a great couples' counselor once a week)

    * I will have a craniotomy (awake for part of it) in March to remove at least 50% of the tumor (right frontal lobe) please share any experiences you think may help me in preparing.

    * I will have stereotactic radiation treatments after the craniotomy to try to get the rest of the tumor - any experiences to share?

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Hi Kate, boy that timing was bad wasn't it? Sorry for that. You posted this as an update on your profile page, if you will repost this as a question on the questions page you will get some response for it. It's kind of hidden here, only those who follow you see your home page unless they just come browsing by.
      Repost and see what the community has to say.

      about 4 years ago
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    User: GregP_WN