• kalindria's Avatar

    kalindria wrote on katlouboid's wall

    Hello and welcome, katlouboid. I'm so very sorry to hear of your diagnosis but you've found a great place to ask questions, get information, and share experiences. We're close in age and were both diagnosed some time ago. I was stage IV at my diagnosis and I'm still here more than five years later -- much as you are.

    A few months ago, I recorded a series of videos for WhatNext about my cancer journey. You may find them helpful. I've included a link at the end of this message should you wish to check them out.

    WhatNext.com is a great place for everyone, from the newly diagnosed to those of us who've been living with cancer for some time - friends and loved ones too! While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.


    In the meantime, I'm here if you have any questions or want to chat.

  • GregP_WN's Avatar

    GregP_WN wrote on katlouboid's wall

    Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx pager. Take a look at it to get you started on some information. I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.


    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

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  • macfightsback's Avatar

    macfightsback wrote on katlouboid's wall

    Welcome katlouboid,
    You are 6 years out from diagnosis. How are you? People diagnosed with earlier stages of Ovarian Cancer generally do better than those of us diagnosed late stage. What do you mean by post cancer treatment trauma? If you would share more about what you are going through, we might know how to help you. I hope you are doing well. Feel free to ask any questions. We are here for you

  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on katlouboid's wall

    Hi katlouboid, welcome to the site. I see you have jumped right in and asked the community a question . Congratulations on being a six plus years survivor of this disease. I myself was diagnosed in 2013 stage IIIC ovarian cancer. The first two years post front line treatment were especially difficult. I kept waiting for the other shoe to drop. As exam times approached I felt the anxiety build. I knew the odds of recurrence were high. At the same time though, I reached out and communicated with other survivors online. WhatNext was the first site I contacted and I have really benefited all these years from the information and added support of the survivors here. I have come to accept that recurrence is still very possible even 7, 10 or more years into the future. With acceptance though for me, came the ability to lessen my fear and get on with life. I am always busy looking ahead , making plans for future trips and activities.There are times I struggle with survivor’s guilt but here again, talking with other survivors really helps.
    Look the site over and continue to reach out. I am sure you will get helpful answers to your question and any others you ask. There really is a great group of survivors on this site. If you ever want to talk one on one, I am happy to talk anytime on my wall as are any of the other survivors. Take care.

  • katlouboid's Avatar

    katlouboid asked a questionOvarian and Fallopian Tube Cancer

    What do people do when they experience post-cancer treatment trauma

    20 answers
    • BarbarainBham's Avatar

      P.S. What did you do about your calcium pill? I quit taking mine because of the size and never started back. There's a Centrum Silver for Women one-a-day vitamin-mineral supplement that comes in a gel form, and I was gonna check to see if it came in a liquid, but never did. It had enough calcium and D for me because I also drink milk.

      4 months ago
    • meyati's Avatar

      The pill dissolved in my throat, and it finally slid down into my stomach. I kept trying to drink water at home to get it down after the Heimlichs-- then breathing deep or trying to talk, moving my head caused the loose calcium to come off the pill and plug up my breathing and then I coughed it out all over my lips and chin.

      I got worried that I might get too much loose calcium and really obstruct my breathing. My family wouldn't be able to do anything--Then I thought New Year's Day was a horrible time to die in front of the family. The hospital has the trained people and a TV to watch the football games. I spent over 3 hours there. The staff was so nice. My oxygen level went to the low 80s. I didn't need oxygen-and I'm alive with normal oxygen levels.

      The pill was a big oblong--stupid- i put it in my mouth- swallowed it with water and turned my head--the pill went sideways and got stuck.

      You just described me about getting back to taking pills. I bought a pill cutter, but it doesn't work on those things.

      I looked this afternoon, and VitaCost.com has all types of calcium pills. It's all OTC pills, and I buy my supplements from them. I have been buying those from VitaCost about 15 years. Those powder Vitamin C they sell in drug and grocery stores dissolve quickly and burn my stomach pretty bad. The only place that I could get C gels at a reliable place is at Vitacost. I need to make that order.

      Jax is the one that was scared of men-He's the Bluetick from TexHoma-Red River Valley. he was really abused by men-He had healing cigarette burns on him, his nose busted up. We don't say-Come, because he still thinks he's going to be abused. We say-- Jax,, Jax- Jax baby and clap our hands--

      Ryder is from 4 Corners (Utah, NM, AZ and Colorado meet) He had beautiful house manners from the get go. He loves people. Like many dogs, he was chained out back- he wasn't abused, but he was bored and barked a lot, so the sheriff took him. They have a bad stray dog problem, and I guess he got jumped. One ear is scarred up. The rest of him was OK-- 15 minutes after he got here, Jax was on the bottom, and he clawed Ryder's ear-so off to the ER we went. He had an infection in one ear-they thought it might need surgery. Being a hound-he wasn't showing any pain.

      Then after that was over, I found a long skinny tumor between his toes. Then everything that could go wrong did go wrong. it either rained or snowed-Jax pulled the stitches out and the plastic bags off of Ryder's foot. We changed his dressing twice a day. The vet checked his foot every 4 days.
      But he had a beautiful shiny coat- correct weight-- a good disposition. he's the spark plug here in the house- he helps me cook and clean-lays down at my son's feet- the 3 dogs sleep together with me.

      I got him where he was pretty good on walks- just heeled- sat when I told him--took him to dog school- private lessons to get used to the place and some dogs walked on with their owners. So I got group lessons. It was very good for Jax-he got used to strange men. It was a love fest for him.

      All of the bad dogs were in with Ryder-the few good dogs didn't come back--The trainer kicked some real bad boys out-gave them their money back- and the bad boys were worse at the next class. So Ryder had his view enforced that only Missy and Jax don't want to kill him. i do love that little Plott.

      4 months ago
    • BarbarainBham's Avatar

      Meyati, I think taking care of those dogs helps you stay alive, don't you?!

      I get my Centrum Silver one-a-day mineral-vitamin supplements from Walmart for less than $10, but they're too big for me to take now. I'm gonna put that on my list for my weekly trip and ask their pharmacist. Do you drink milk, too? I don't remember. I was thinking about checking into the Prolia shot. My mom took it and didn't complain.

      4 months ago
  • katlouboid's Avatar