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    kayaker asked a questionColorectal (Colon) Cancer

    colorectal cancer

    9 answers
    • kayaker's Avatar
      kayaker

      Thanks everyone. I'm very touched by your words of encouragement. This is hard !

      about 4 years ago
    • CrazyHarry's Avatar
      CrazyHarry

      I'm going through a very low period. Had the surgery 3 weeks ago. Then the pee problems. And now just a general feeling of malaise. Then my wife gets pneumonia this week so we are both struggling. Finally went it today to a movie and I was uncomfortable most of the time but we both made it through and enjoyed it. Then an afternoon of misery in bed. Finished off the day with a nice dinner out that refreshed us. I felt hopeless today. We were able to draw a little enjoyment out of the day. The best thing about a bad day is that there is always another day coming up. Best wishes on your healing journey and to better days ahead.

      about 4 years ago
    • booboo's Avatar
      booboo

      I was on that course of treatment post-surgery and it was really tough. Its hard to stay properly hydrated, especially with the ileostomy, and its hard to absorb enough calories for the energy you need. Have him drink high calorie things. Starbucks hot chocolate was one of the best things for me, but that was in winter time. Milkshakes may be the way to go in warm weather. He isn't absorbing much of the nutrition from his food because by the time solid food is broken down its dumped into the bag. Drinking his calories will get more into his system faster.

      Xeloda is a really harsh drug. I had to discontinue it mid-treatment and finished up with just the oxiliaplatin infusions. Talk to his doctor about the fatigue, or ask the chemo nurses what they can suggest.

      As for the caregiver, I don't know what to suggest but I think you should speak to a doctor yourself. I can only imagine how hard it must be to be on your side of this situation. Is there any way you can get some help in the house, or someone to help you with patient care? I suggest that you contact the American Cancer Society, the Livestrong Foundation and other cancer charities who may be able to point you to available services. Many times local groups provide assistance with rides to treatment, housekeeping, meals and whatnot. Your hospital or cancer center will have social workers available who can guide you to available resources. See if you can get some time for yourself and pamper yourself a little, with naps or maybe a lunch out with friends or some shopping and a pedicure. Take care of your own health - this is a huge stress on you and although all the energy is focused on the patient, you have needs too.

      Good luck. I hope you can get some help and some rest. And that your patient has a good treatment outcome.

      about 4 years ago
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    Radiation