• GregP_WN's Avatar

    GregP_WN wrote on Kaylia's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/non-hodgkin-lymphoma-nhl

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

    Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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    GregP 3X Survivor
    WhatNext Community Mgr
    3X Wego Health Awards Finalist
    ACS Voice of Hope Speaker

  • Kaylia's Avatar

    Kaylia shared an experience

    Side Effects (Worsening of pre-existing conditions: Chronic Fatigue Syndrome / M.E. & Fibromyalgia): Both conditions have significantly worsened. The Fibromyalgia became worse during treatment and remains worse almost 3 years on. The M.E. has also become worse and is less stable. I continue to have more frequent flare ups with less time of feeling 'well' in between.

  • Kaylia's Avatar

    Kaylia shared an experience

    Celebration (Remission): In August 2016 I was given the news I had wished for - no evidence of disease, I was in remission!!!!

  • Kaylia's Avatar

    Kaylia shared an experience

    Radiation (External radiation ): After chemo I had a PET scan which showed a very small area of lymphoma remaining. This meant 15 sessions of radiotherapy.

    The worst part of this treatment was the fatigue from travelling to the hospital every week day.

  • Kaylia's Avatar

    Kaylia shared an experience

    Procedure or Surgery (Implant chemotherapy port): I had a Hickman Line inserted about a week before my second chemo (the first as an outpatient, and the first of a different type as my NHL had been more clearly classified by the lab).

    This was the first of 2 Hickman Lines - the first one split while I was in hospital for neutropena, and I developed an infection at the site 2 weeks before my final chemo had been scheduled.

    I ended up with a PICC line for my final chemo.

  • Kaylia's Avatar

    Kaylia shared an experience

    Procedure or Surgery (Pericardical Drain): I was actually considered 'critical' (although was not aware of this until after) due to severe pericardial effusion. I had a very painful procedure to place a drain into the pericardium, but from there on I began to feel so much better. I spent 3 weeks in hospital.