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    Kaylia shared an experience

    Side Effects (Worsening of pre-existing conditions: Chronic Fatigue Syndrome / M.E. & Fibromyalgia): Both conditions have significantly worsened. The Fibromyalgia became worse during treatment and remains worse almost 3 years on. The M.E. has also become worse and is less stable. I continue to have more frequent flare ups with less time of feeling 'well' in between.

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    Celebration (Remission): In August 2016 I was given the news I had wished for - no evidence of disease, I was in remission!!!!

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    Kaylia shared an experience

    Radiation (External radiation ): After chemo I had a PET scan which showed a very small area of lymphoma remaining. This meant 15 sessions of radiotherapy.

    The worst part of this treatment was the fatigue from travelling to the hospital every week day.

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    Procedure or Surgery (Implant chemotherapy port): I had a Hickman Line inserted about a week before my second chemo (the first as an outpatient, and the first of a different type as my NHL had been more clearly classified by the lab).

    This was the first of 2 Hickman Lines - the first one split while I was in hospital for neutropena, and I developed an infection at the site 2 weeks before my final chemo had been scheduled.

    I ended up with a PICC line for my final chemo.

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    Procedure or Surgery (Pericardical Drain): I was actually considered 'critical' (although was not aware of this until after) due to severe pericardial effusion. I had a very painful procedure to place a drain into the pericardium, but from there on I began to feel so much better. I spent 3 weeks in hospital.

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    Oh No (Just Diagnosed): Didn't make it long enough for tests new GP had arranged and presented as an emergency at A&E. A batch load of scans and tests brought the diagnosis of Non Hodgkin's Lymphoma. This was actually more of a relief than an "Oh No", as I was finally getting some answers.