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    User: CancerNews

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    kaymartian asked a questionBreast Cancer

    Mastectomy or not?

    28 answers
    • kaymartian's Avatar
      kaymartian

      I'm not sure what type I had/have. I don't understand all of that. I'm sure one of the doctors has mentioned it. I went in to have DCIS removed. The invasive cancer is unrelated to the DCIS and unrelated to my cancer in the opposite breast three years ago. I was told that all three cancers were different types and that they were unrelated to each other. I see the surgeon tomorrow so I can ask him what type it was. I am almost 63 years old but, feel I'm not done here. I have raised two daughters, a grandson and got two nieces through high school. I have 3 other grandchildren and am very close to the youngest granddaughter. Having said that I am just not ready to throw in the towel. If this was like the last time, where there was a lump and it could be felt I would be confident that they got it all. I would follow treatment and hopefully be done with it. This time the invasive cancer was very small and very deep. If the doctor hadn't taken as big a margin as he did it would not have been found. That's the part that scares me. Can the doctors be 100% sure or close enough to comfort that there is no more in there in another area. If there is how aggressive is it and would it ever be detected? So many questions and such a big decision to make. My surgeon will go in, do the mastectomy and they will do reconstruction at the same time. I have had radiation on the right side so not sure how that will play into things. The consensus seems to be that this the path I need to follow...double mastectomy. I'll keep you posted.

      about 3 years ago
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      kaymartian

      Doctor said they got it all. Cancer board just wanted to consider me all done with maybe a bit of radiation. Dr. Mazzeo said he's with me on how it was caught by luck. He believes all is well but, doesn't want to leave things unfinished. He wants to test my lymph nodes. If they come back clean they we will do some radiation which will take care of any other undetected cancer that is in there. He said neither he nor the cancer board recommends mastectomy at this stage of the game but, he knows it is my choice. He also said a second opinion would most likely give the same recommendation. He said if there was a big tumor or other things going on and I was told to get a mastectomy then he would recommend a second opinion. He said sometimes other doctors/boards can come up with successful alternatives to mastectomy. He said in my case it's unnecessary. I told him I was trusting him to guide me through this. I know he's human and is only capable of so much but, I truly believe he is being totally honest with me based on his years of experience. So having said that......we'll see where the lymph node thing takes me. If that comes back positive then I may be back to the chemo plan.

      about 3 years ago
    • walkingon's Avatar
      walkingon

      Yes, if the surgeon had known about the invasive cancer went he "went back," he would have done the sentinel lymph node biopsy then. So you should indeed have it now. It will tell you and him a lot. Another option you may have is to have the OncotypeDX test done on the tumor cells to see what the likelihood of recurrence is and if chemo could be of benefit. I would find out, as someone suggested, if you have ductal carcinoma or the rarer lobular carcinoma, which has somewhat more chance of recurring in the other breast. But if your surgeon and the tumor board are confident, and you are willing to do radiation again, and chemotherapy if needed, then keeping your breasts is not a bad outcome at all!

      about 3 years ago
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    Question: Mastectomy or not?

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    User: AmyJo

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    kaymartian asked a questionBreast Cancer

    calcifications

    4 answers
    • lilymadeline's Avatar
      lilymadeline

      You should have a biopsy on the right side as well! You are absolutely 1000% right to be concerned about this! Of course hopefully it is nothing and it should be nothing, but you don't know it is nothing for sure without a biopsy! And I can't tell you how many times I have had biopsies on cells that looked innocent but turned out to be cancer. OK I can tell you- twice now! Uterine which they though was active areas after a hysterectomy and thyroid cancer which they also though was nothing but it is cancer. Oh well! I have breast cancer as well, stage IV and have had my share of beast biopsies and surgeries, ouch! So sorry that you have to go through this through the holidays but please err on the side of caution. Cancer is a devious foe who sneaks up on us sometimes when we least expect it so it is best to always be one or two steps ahead. Take care and best wishes!

      over 3 years ago
    • ld_105's Avatar
      ld_105

      I had multiple calcifications for years and 5 surgical biopsies over a 20 year span. No cancer. Your doctor is being proactive. Did you see the mammogram when you were DX'd with BC? My tumor was blank, like a black hole. The calcifications floated around the area. Think positively and pray for NED. Wishing you all the best.

      over 3 years ago
    • kaymartian's Avatar
      kaymartian

      Thanks everyone for your advice and well wishes. My oncologist is on vacation this week so I guess I'll just have the left side biopsied. Would have liked to have had both sides done before the first of the year since I met my deductible on my insurance but, doesn't look like that's going to happen. Not even sure they will agree to do the right side. Have my 6 mos. appointment with my oncologist on the 9th so will discuss the findings with him then.

      over 3 years ago
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    kaymartian shared an experience

    Celebration (Finished treatment)