- Saratoga, CA
- Member Since Oct 2012
Their Diagnoses (1)
- Patient: Slow Growing, Chronic Lymphocytic Leukemia
- Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 11 years ago, Male, Age: 57
- View this journey (4 Experiences)
Patisblonde wrote on Kaz's wall
I see you have the same cancer as me, I'd like to follow you and your journey. I'm scared as I live alone and in 7 wks may start treatments. They gave me a list of 5 drugs. Let me know about your side effects if any in the treatments you had. Thanks Pat
Kaz wrote on seadoodude2002's wall
Have you heard of Imbruvica? I went on a trial 4 years ago before this drug was FDA approved and it worked great for me. If you can find a trial with Imbruvica, it may be good for you.
I was diagnosed 10 years ago...went through two of treatments before getting on this trial. My trial is run out of Ohio State but it was a small trial (87 patients) and is closed.
There is another drug similar to Imbruvica that was called CAL 101. It goes by another name now but it also has excellent results.
Feel free to reach out with any questions.