• Patisblonde's Avatar

    Patisblonde wrote on Kaz's wall

    I see you have the same cancer as me, I'd like to follow you and your journey. I'm scared as I live alone and in 7 wks may start treatments. They gave me a list of 5 drugs. Let me know about your side effects if any in the treatments you had. Thanks Pat

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    Kaz shared an experience

    Decision Point

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    Kaz shared an experience

    Clinical Trial (CAR T-cell): I'm starting this procedure in two weeks. Looking forward to a successful procedure.

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    Kaz started following

  • Kaz's Avatar

    Kaz wrote on seadoodude2002's wall

    Have you heard of Imbruvica? I went on a trial 4 years ago before this drug was FDA approved and it worked great for me. If you can find a trial with Imbruvica, it may be good for you.

    I was diagnosed 10 years ago...went through two of treatments before getting on this trial. My trial is run out of Ohio State but it was a small trial (87 patients) and is closed.

    There is another drug similar to Imbruvica that was called CAL 101. It goes by another name now but it also has excellent results.

    Feel free to reach out with any questions.

    Good luck.

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    Kaz started following