• KBAJ's Avatar

    KBAJ wrote on lindi143's wall

    Hi Lindi143, I haven't seen anything posted by you in a long time. Hoping that this means that you and your husband's journey with prostate cancer is going well. I've been thinking about you though and would love to know if you did the immunotherapy and how it's going. Peace, Kbaj

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    • lindi143's Avatar
      lindi143

      Hi Kbaj. Yes the immunotherapy worked very well and no bad side effects. Thank you for thinking of us. We are trying to get thru this Covid mess. He is working and has no symptoms. He is on xtandi and the shots. The psa was up to 2.8 in March so he had a mri. We go back in oct. not sure what we will do if it. Us up again. How are you. I hope you are well. Again thanks for checking on us

      2 months ago
    • KBAJ's Avatar
      KBAJ

      I'm so glad to hear that things are going well. My husband's PSA has remained low (under 1) since his surgery and subsequent radiation due to positive margins. He's not on any meds now and feeling well, just monitoring the PSA every 6 months. I forget about it in between tests and then get anxious till we get the results. We're sad about the COVID interfering with travel plans... we hate to put off things now-a-days as you can imagine! Anyway, stay safe and well. Best wishes!!

      2 months ago
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    KBAJ wrote on lindi143's wall

    Hi Lindi, haven’t seen you post in awhile. Hope that means that all is going well for you and your husband. Did he start the immunotherapy? Can you tell that it’s helping? We’re due for another PSA soon... keeping fingers crossed for all of us!

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    • lindi143's Avatar
      lindi143

      HI KBAJ yes he had it in September and it seems to be workign we are waiting right now on a blood test the first since we had ti He is on Xtandi too and we are hoping it keeps it at bay for a while. this is so stressful Hoping you get good results thank you so much for checking on us,

      over 1 year ago
  • KBAJ's Avatar

    KBAJ wrote on lindi143's wall

    Hi Lindi, I was just thinking about you the other day. I think our husbands were diagnosed about the same time. I corresponded a bit at the time but hadn't noted anything from you recently. My husband is in a holding pattern for now. Never had a 0 PSA after his robotic prostatectomy and radiation but it has stayed under 1 so our Dr. just has us watching and waiting for now. Looks like your journey has been more complicated. I'm sorry for that. How are YOU doing? It's not easy being the "sick" one for men but it's not easy being the "healthy" one for their wives either. Keep your chin up. KBAJ

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    KBAJ wrote on virg112012's wall

    Dear virg112012, just checking in to see how you are managing with your cancer as you haven't posted in awhile. I have a friend who was recently diagnosed with Uterine papillary serous carcinoma and we are trying to get some idea of what the future looks like... Thanks for any info/guidance you can give!

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    KBAJ wrote on binks1961's wall

    Dear binks1961, just checking in to see how you are managing with your cancer as you haven't posted in awhile. I have a friend who was recently diagnosed with Uterine papillary serous carcinoma and we are trying to get some idea of what the future looks like... Thanks for any info/guidance you can give!