• KC49's Avatar

    KC49 asked a questionColorectal (Colon) Cancer

    is it too late for a second opinion

    12 answers
    • KC49's Avatar
      KC49

      thanks for all your advice, not sure what I am going to do but I will keep all suggestions in mind.

      3 months ago
    • geekling's Avatar
      geekling

      @GregP_WN. We disagree. It doesnt mean anything terrible. Bet we could still have a beer and some laughs and be on good terms, ya know?

      I would not expect a doctor to refer a patient to anyone who he thought might disagree with him. Perhaps you've noticed that on of the lines on many office questionaires is who referred the patient. Personally, I believe there is a defense system between doctors and that too many will simply back each other up despite the consequences to the patient.

      I mentioned a surgeon I had run across who did not understand left and right. Another doctor told me "In all fairness, he was looking at your left and not his left." I did not let the defending surgeon cut me up either.

      Actors neednt have any education but they manage to figure out the difference between stage left and their personal left. Sometimes stupid simply is what it is and defending it is even more stupid.

      For myself, when I want more than one medical opinion, I seek them out completely independently of each other.

      3 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      KC49, i hope you aren't offended, but I read your Profile and saw that you listed you are Stage IV (I am also). Because of that, I want to encourage you to call and go to a NIH-associated cancer center now to see what else is available for you. Clinical trials make available drugs and treatments while they are being researched that haven't yet been approved for the public.

      Since it may take time to get an appointment, it's best to call for an appointment now while you are stable, and find out your options. Then if your health changes, you'll have a plan. Best wishes.

      3 months ago
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    KC49 started following

    Question: Scan results.

  • KC49's Avatar

    KC49 wrote on Coconut's wall

    what about you? You are recurrent , does that mean your initial stage was lower? If so what was your chemo/treatment and what did it do for you?

    1 Comment
    • Coconut's Avatar
      Coconut

      Unfortunately, the first diagnosis was stage IV . Folfox4 was my first and second protocol. First time, it gave me 9 months break. Second time, 1.5 years. Then fulfiri which was so harsh on my body so, i am now back on folfox4.

      3 months ago
  • KC49's Avatar

    KC49 started following

    User: Ginagia

  • GregP_WN's Avatar

    GregP_WN wrote on KC49's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/colorectal-colon-cancer

    you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you

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  • Coconut's Avatar

    Coconut wrote on KC49's wall

    Hi KC49, you have posted a question about the scan and i added to the answers given , but I would like to know , if possible , what kind of chemo therapy were used on you. I have colorectal cancer also with mets to the lungs and the liver .

    2 Comments
    • KC49's Avatar
      KC49

      oxiliplatin, the combination was called, I think . I took xeloda (pills) everyday then an infusion on the third week, something like that. It's amazing how much I have forgotten. The last time was last May 2016. I got really weak so we stopped and my tumors have been stable ever since.

      3 months ago
    • Coconut's Avatar
      Coconut

      Thank you very much for taking the time . Hope you enjoy long and happy recovery

      3 months ago