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    Kd61 asked a questionSmall Intestine Cancer

    G.I.S.T. Cancer

    8 answers
    • BoiseB's Avatar
      BoiseB

      Never say alternative say integrative. There are many diet protocols that help traditional therapies and some that hinder them. You should consult with your Dr. before trying any complementary treatment. If you don't like the way your treatment you should first seek a second opinion from a highly respected Dr. There are many different traditional treatments. I have worked out a sucessful intigretation of traditional and non traditional methods through second opinions.

      10 months ago
    • meyati's Avatar
      meyati

      Boise, You nailed it. there is a difference between having a diet and supplement that includes herbs-etc for a cancer patient (which is integrative), and having the diet as the main thing and as a cure-all (alternative). Many of the alternative that I've seen claim to cure or be highly significant in curing cancer.. Some people get really wound up about this and completely depend on natural cures.

      My oncologist put me on a high protein diet- and ignorant dietitians tried to tell that I quit his care-these were supposed to be oncological dieticians in the main clinic. They even tried to explain the facts of life to him---they were under investigation I don't have a hormone fed cancer as some people do--mine is heat activated and fueled.

      My diet was integrated for, with, and after therapy. It worked and it has worked. I think that lack of trust and desperation are the underlying issues with alternative treatments. .

      10 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      kd61, I have GIST diagnosed in 2013, and was prescribed a Gleevec chemo pill daily. I've read GIST is rare, and because of that patients should go to a large medical center familiar with diagnosing it and treating it. When I've tried to go off Gleevec, my tumors have spread. My doctor says I MUST take my medicine if I want to live, although I've started having problems with nausea. Get a copy of your pathology report and see what the mitotic rate is.

      If you aren't confident in your doctor, get a second opinion from a NIH-associated Comprehensive Cancer Center near you:
      https://www.cancer.gov/research/nci-role/cancer-centers/find#Ohio
      Your state has one in Columbus or Cleveland.

      How are the side effects of Sutent? What is your reason for wanting to do alternative medicine? Since there are several medicines now for GIST, I wouldn't consider alternative medicine unless prescription medicines failed me. Are you aware that until Gleevec and Sutent were developed a few years ago, that GIST patients had a very short lifespan? Less than half lived 5 years. We are very fortunate to have access to our meds. Best wishes.

      10 months ago
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    Question: G.I.S.T. Cancer

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    Kd61 shared an experience

    Side Effects (Chemo brain): Fatigue, muscle and joint pain, swelling under eyes

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    Procedure or Surgery (Surgery): I had 40 tumors removed from my first surgery. It greatly impacted my daily activities. Recovery was longer than I expected.