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    Kellie_T started following

    User: Nooner124

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    Kellie_T posted an update

    I've been on Zelboraf since mid-February 2012 for Melanoma in left iliac node. First eight weeks showed the mass was 1/2 the size which was fantastic with no new disease present anywhere else. Then fast forward another 8 weeks later and the Melanoma is no longer visible on scan! Another 8 weeks out and am considered NED. Still taking Zelboraf - six pills per day. The side effects are extremely manageable. Keep fighting! Living life and loving it!

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    User: susan1323

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    Kellie_T asked a questionSkin Cancer - Melanoma

    Is there. Anyone out there taking Zelboraf for Melanoma? If you wouldn't mind letting me know how you are doing with it

    6 answers
    • bjsimme's Avatar

      I have been taking Zelboraf since the end of March 2012, I saw major improvements within 6 days and it usually takes 6 weeks. I have lost body hair and some hair in brush but you can't really tell I have thick hair on my head. I am a 50 year old female I have also gained some energy back, but I am fighting with Musclar Dystorpy also, so my joints ached anyway didn't notice any difference when taking ZELBORAF. Dr just called today blood low need 2 pints, I have been fighting since July 2010. I am on a walker full time now also. Hope this helps with your decision. [email redacted]

      almost 9 years ago
    • Cricket's Avatar

      I have been on Zelboraf for a little over two months now. I take 8 pills a day. The team I see at the University of Colorado said that because I was in good health and young (45) they didn't think the side effect would be too bad other than the sun sensitivity, but I actually experienced most of the common side effect during the first month. They were so concerned that they pushed up my MRI by two weeks to see if it actually was working. Which thankfully it was. My melanoma is in my Brain and was reduced about 30% the first two weeks and now at 8 weeks it in down to about 50%.
      Most of my side effect have lessened. I am still very tired and have not gone back to work. I am still losing my hair, but I had a lot to begin with so it is not that noticeable to others. My nausea is almost gone, but I have a med to help me with that. I take prednisone to take away the pain I had from the skin rashes.

      almost 9 years ago
    • sugarbear's Avatar

      i have been on zelboraf for almost two months -when i started it ,i had lumps all over my trunk ,under my armmpits and on my arms -within 1 week of being on zelboraf ,the lumps were mostly gone!this drug is crazy priced and weve had to fight insurance but the people that make the drug have a coupon that can help with the cost -just go to genentech.com and answer a few questions -its worth your time-as far as side effects -i have pretty bad joint pain and my skin feels like a lizard -my face mainly =but i havent had nausea or heart issues so i guess im lucky
      hope this helps

      over 8 years ago
  • Kellie_T's Avatar

    Kellie_T posted an update

    Is there. Anyone out there taking Zelboraf for Melanoma? If you wouldn't mind letting me know how you are doing with it (side effects) etc. I would like to hear from you.

    1 Comment
    • DaveWaz's Avatar

      Hi Kellie,

      Good question. I'm going to suggest that you post this in the Questions section to give you the best chance of having your question be seen by more people.

      You can do this by clicking on the "Ask Network" link on your logged in home page or the "Questions" link at the top of this page. When you post needs/questions using our question feature, we route your question to everyone in the network who might be able to help. Also, know you can use the "Update" feature on the site to keep anyone who might be following you on WhatNext up to date.


      over 9 years ago