• Kenster's Avatar

    Kenster shared an experience

    Celebration (Breakthrough): On August 26, 2019 my doctor said my tumors were rapidly increasing in size and number. He said, with the exception of Chemotherapy, we are out of options. I told him I didn't want chemotherapy so this was the end of the road of a long fought battle. The doc said as long as I'm feeling good, I should go home and enjoy my days and so I did. The next morning, Aug-27, my doctor calls me at home and says he has good news. He had just received a biopsy report from one of my tumors. He said my cancer gene mutation was a very rare match for a new immunotherapy called Keytruda. The treatments are given by IV and I received my first treatment on Sep-6-2019. Three weeks later on Sep-27 I received my second treatment and at this time my PSA was 16.4. On Oct-18-2019 I received my third treatment and at this time my PSA had dropped to 3.4. I will return on Nov-8 for another treatment and another PSA test. I'm feeling really good right now. God has blessed me.

  • Kenster's Avatar

    Kenster shared an experience

    Oh No (Cancer has spread/Metastasized): PSA returned in April of 2019 and increasing rapidly. My PSA doubles every month. In July new scans show numerous tumors in my pelvic area and PSA is 3.8 at this time. I began taking Zytiga and in one month it showed very little help in slowing the PSA. I am now classified as Advanced Metatiastic Prostate Cancer Resistant to Hormone Therapy.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Well shoot! Ken, I hate to hear this. I hope you do well beating it back down again. Keep us posted.

      29 days ago
  • Kenster's Avatar

    Kenster shared an experience

    Oh No (Cancer has spread/Metastasized): Unfortunately the Apalutamide (Erleada) failed. I was on it for 3 months and it did nothing to slow my PSA down. I stopped taking it in Aug 2018. At this same time my scans showed the cancer had metastasized and there was a golf ball size tumor in my left pelvic area. I received 3-D radiation that targeted the tumor and my PSA slowly dropped to .14.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Is that 3-D radiation the Proton therapy, or is that something different?

      29 days ago
  • Kenster's Avatar

    Kenster started following

  • Kenster's Avatar
  • Kenster's Avatar

    Kenster shared an experience

    Oh No (Cancer is back/Recurred ): Unfortunately the Lupron only worked for 6 months. Started Lupron in Aug-2017, another injection in Nov-2017 and the injection received in Feb-2018 did not work. PSA in May was .83. Checked it again 3 weeks later and it was 1.5. Almost doubled in 3 weeks. NOT GOOD! Doctor is starting me on a new drug that was just approved in Feb-2018 called Apalutamide (Erleada). Will see how it goes??

    2 Comments
    • Indyeastside's Avatar
      Indyeastside

      Kenster I have been dealing with this since 2008. Lupron has helped me in conjunction with casodex. Been NED since three years ago thank god, But have had three relapses over the ten year period. Like to hear how the new drug works for you. II'm stage IV. I wish you well.

      over 1 year ago
    • Coach's Avatar
      Coach

      My husband (coach) has been battling Stage 4 Metastatic Prostate Cancer for 14 years. He has had all the hormone treatments, various chemotherapies, and radiation. He is currently on 5FU as a clinical trial as it has not been approved for Prostate Cancer. I think there is much more that can be done for you. I pray you recite bestcare possible for you.

      over 1 year ago