Kenster I have been dealing with this since 2008. Lupron has helped me in conjunction with casodex. Been NED since three years ago thank god, But have had three relapses over the ten year period. Like to hear how the new drug works for you. II'm stage IV. I wish you well.
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Kenster started following
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Kenster started following
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Kenster shared an experience
Oh No (Cancer is back/Recurred ): Unfortunately the Lupron only worked for 6 months. Started Lupron in Aug-2017, another injection in Nov-2017 and the injection received in Feb-2018 did not work. PSA in May was .83. Checked it again 3 weeks later and it was 1.5. Almost doubled in 3 weeks. NOT GOOD! Doctor is starting me on a new drug that was just approved in Feb-2018 called Apalutamide (Erleada). Will see how it goes??
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Coach
12 months agoMy husband (coach) has been battling Stage 4 Metastatic Prostate Cancer for 14 years. He has had all the hormone treatments, various chemotherapies, and radiation. He is currently on 5FU as a clinical trial as it has not been approved for Prostate Cancer. I think there is much more that can be done for you. I pray you recite bestcare possible for you.
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Kenster shared an experience
Oh No (Cancer is back/Recurred ): After more than 5 years of undetectable PSA it is back. PSA test in Jun-2017 showed .19. PSA test done 60 days later showed .53. Looks like it's on the move again. Received Lupron injection Aug-2017.
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Kenster started following
Question: Radiation after total prostate removal
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Kenster wrote on rlfuller7's wall
Hey rl,
I know you're plenty worried and you want to get some kind of treatment going fast. I understand as I'm in your shoes, but I'm more than a year and a half ahead of you. I was diagnosed with gleason 9 in June of 2011. Had the DaVinci Robotic surgery in Sep-2011. Pathology report showed seminal vesicle invasion, perineal invasion and one lymph involvement. I began hormone therapy and radiation treatment in Nov-2011. Completed radiation in Jan-2012 and stopped hormone therapy in Mar-2012. Since then I get a PSA test every 3 months and so far the PSA is still undetectable. I have read several books by Dr. Charles Myers and I am following his advise on diet, vitamin supplements and exercise. I still worry, but nothing like I did for those few months after diagnoses. Over time your worry will calm down too, even with gleason 9. Make sure you have a good oncologist and then work with him closely. XXX Luck and God Bless.
