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Let me know if I can answer anything for you. I am a survivor of probably something similar. It's been 11 years now.
I'll bet yours was a PNET?
So was mine but it didn't show up until I was 44. Not many of us out there.
Hope you are doing well.
Decision Point (What treatment to have, and where to have it.): This one is tough because it your to make, as it should be. However, time is running out and you need to make a decision that will be the most important in your life.
Celebration (Everything): We celebrate a LOT more of everything now!
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Stage IV metastatic brain & lymph nodes lungs