• kimba9584's Avatar

    kimba9584 posted an update

    well time for bone scan and ct i may glow by end of day. i just hope i can get answers not knowing if its back is the worst

    1 Comment
    • beachbum5817's Avatar
      beachbum5817

      I am sending good vibes your way. I hate that you have to go through all of this. I agree that waiting is the worst. Let us know how you make out. Take care.

      4 months ago
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  • kimba9584's Avatar

    kimba9584 shared an experience

    Oh No: so second blood work came back went up 2 points in 3 weeks got to have pep scan . i wish i knew where it may be dr. says could be just inflammation of something .so crossing fingers silly have to wait for insurance to ok test you wonder why we have to wait

  • kimba9584's Avatar

    kimba9584 asked a questionBreast Cancer

    cancer antigen test

    7 answers
    • Fight4Life's Avatar
      Fight4Life

      Hi Kimba,
      I self-pay my naturopath MD who suggested we run markers CA 27.29 & CEA to monitor recurrence. My markers steadily increased over the course of 3 months from 20 post mastectomy, to 36, 42 then 47. Consequently, I demanded my onc run scans as my treatment center also does not run markers because..."The American Cancer Society doesn't recommend them, they are unreliable, etc..." PET scan revealed a metastatic lesion in my internal mammary lymph node with soft tissue involvement. In some instances these markers are reliable. My recommendation would be to continue to research and advocate for yourself and not solely rely on what you are told by your onc. Unfortunately treatment of this disease isn't an exact science and we all are different so what applies to some doesn't necessarily apply to all.

      5 months ago
    • kimba9584's Avatar
      kimba9584

      thank you all for answers will be doing more research test again on friday making a list of question . its so nice to have someone to ask questions thanks sometimes we worry to much

      5 months ago
    • Carool's Avatar
      Carool

      kimba9584, I hope you have good test results, even if the test isn’t reliable. Yes, we sure worry too much!

      5 months ago
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    kimba9584 started following

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    kimba9584 shared an experience

    Celebration: not sure if celebration but i'm at point of moving on , put house up for sale , its to much for me, time to get a small place . kids all have their own houses . i've looked at a few places no steps yeah for me the anti hormone drugs lots of pain with arthritis steps kill me after work i know im not on here alot been cleaning house out after work and days off . i'm excited to start a new life and scared .

    3 Comments
    • beachbum5817's Avatar
      beachbum5817

      This is a huge undertaking. I cannot imagine packing up a house that you have lived in for years. I dread the day. I hope the sale of your house goes quickly and smoothly. Good luck on your new adventure. Take care.

      over 2 years ago
    • Marinace's Avatar
      Marinace

      I hope you sell your home quickly and move to a new place that is full of positive energy, so you can make new memories.

      over 2 years ago
    • 2943's Avatar
      2943

      Good for you! I ,too, have extreme pain from anti hormone meds. I am trying out second one but am back to problems. Some have said it went away over time so will try. Congrats on your new chapter decision.

      over 2 years ago