• KiVier2011's Avatar

    KiVier2011 asked a questionBrain and Spinal Cord Tumors in Adults

    21-y-o son dying of cancer

    13 answers
    • BoiseB's Avatar
      BoiseB

      I cannot imagine the sadness you feel. I will be praying for your son and for you.

      10 months ago
    • geekling's Avatar
      geekling

      You know your boy best, Kivier2011.

      You know his hopes, his dreams, his desires for what was to be his future. Is he able to walk? Does he? He wont be part of the family business. He wont have a wife or children of his own. Is he in pain? Do his friends visit? How to explain ...

      Sit yourself down. Breathe deeply. Again. Once more please. You cannot take this journey for him but you can better understand. Imagine your life without the use of your arms. Imagine an inkling of the frustration; the anger; the building weakness turning you from anger to despair. And he is alone in this.

      There are two choices. You are family and can cajole him with humor or comfort him as best as you are able. People tell me to look at "uplifting" stories of those worse off than myself. Those stories do not uplift me. They actually make me more unhappy like I am somehow failing because someone more wretched than me is a light warrior.

      I dont know your son. A gal who helped me when I was being burned made fun of me. She imitated my waddle walking and my moans. She was truly funny. Through all the pain, she showed me something light. We imagined ourselves as raptor dinosaurs (I guess you had to be there) and for a moment, my heart was lightened.

      I think what I am trying to convey is that everyone in your household is overwhelmed. How does one eat an elephant? One bite at a time. Seek to find moments, even seconds to lighten his load. Is there any reason that you cant help him physically out of the house? Even if a brother has to carry him, being outside, on the land he has always known, may bring him some peace. I am a city dweller now but I miss the midnight country sky. I feel bigger and an important thread in the Universe when looking up as part of Everything. I belong. Energy keeps changing but it doesnt disappear. I think to eventually travel the Universe as the ashes and dust from whence I came. I forget that indoors. I dont know your son.

      He needs to have hope even if it is only in peace and assurance of the beauty and light awaiting him when he drops his burdens in the UnDiscovered Country. If you dont know what is in his mind, ask him. Explain that you want to be with him as much as humanly possible so you need to try to understand and to hold and comfort him in every way possible. That is what being a Mom entails.

      As little finite creatures we are unable to truly understand the everlasting grace which is everything.
      Cancer, mainly, is being extraordinarily tired and achy or being extraordinarily tired with spots of intense pain. You cant live for him and you cant die for him.

      Im not sure a councelor would be a right thing at this point. A bad fit would be disasterous. I suppose the only thing I can do for you is to listen (read your words) and that may be the only thing you can do for your boy.

      Again, it is late but think to try (if David agrees), skipping the fish, skipping the chicken and adding in fruit. Guanabana (aka soursop or graviola).

      10 months ago
    • geekling's Avatar
      geekling

      Sorries. The nite got away from me. The thing about Mom Nature assists is that they take a long time; sometimes years and there are no guarantees and there are simo many but they do not contradict each other.

      http://www.cureyourowncancer.org/the-kelly-hauf-story-how-she-beat-brain-cancer-naturally-with-cannabis-oil.html

      My heart aches for you and for David.

      10 months ago
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    Question: Just Livid!

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    Oh No (Cancer is back/Recurred ): The tumor has quadrupled in size since April 2016, and since it is at the top of his spine, it is compressing his spinal cord and causing issues with his arms and legs. Surgery and radiation are not available, and so we are trying to buy time by starting Avastin, an experimental treatment at best. :-(

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    KiVier2011 shared an experience

    Drug or Chemo Therapy (Chemotherapy): Sunitnib as experimental treatment, did not work and severe impact on health. December 2015-February 2016

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    KiVier2011 shared an experience

    Procedure or Surgery (Surgery): Muscle graft to make final repair of pseudomeningiocele. Found infection in CSF, catheter inserted to be able to treat with antibiotics.