Hi Kleinschierer .... I was diagnosed with endometrial cancer - Endometrial Sarcoma, actually, and estimated to be at stage III ... I, also had a total hysterectomy. I completed chemo on April 20, 2012, and completed radiation on July 17, 2012. If you have any questions, or if you just want to chat, just let me know. God bless you along your journey.
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Kleinschleter asked a questionEndometrial (Uterine) Cancer
Endometrial Uterin Cancer - Stage 3, Grade 3. Hysterectomy and Bilaterial Ovary Removal. Looking for others. Started Chemo already
5 answers-
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JeanB
about 9 years agoHi, and welcome. I have stage III endometrial cancer. I've had total hysterectomy and am in the process of going through tests to make sure my heart and kidney functions are normal to determine which chemo drugs I am going to do. I get a port on Monday, go to a TLC class on tuesday. I did my CT scan today and see my oncologist next week. Then its onto chemo!! This site has so many wonderful people, and I am so glad I found it!!!
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WendyLew
about 9 years agoI had my surgery for Uterine 1A and Ovarian 3C in December and just finished my 6 chemo treatments last week (Taxol/Carboplatin) and Dr has decided I do not need radiation, I have my CatScan this coming week. I am feeling better day by day! Anything I can help you with? I have lost all of my hair but expect it to be growing back in a few weeks! I have learned some great makeup tips for eyebrows, and head scarves. fake bangs, etc...
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Kleinschleter started following
User: KateMarie
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Kleinschleter shared an experience
Symptom Management: zofran for nausea. 5 days of tylenol and ibuprofin following chemo.
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Kleinschleter shared an experience
Side Effects: nausea, loss of hair, bone aches, mouth sores, insomnia
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Kleinschleter shared an experience
Drug or Chemo Therapy
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Kleinschleter posted an update
HI Everyone, I have Stage 3, Grade 3 Endometrial cancer that spread to the cervix (40%) and there was cancer found on the lower abdomen wall and one lymph node affected. I was seen by Drs. all throughout last year and had 2 failed attempted biopsies in the Drs. office (very painful... no meds). Each time they said they were not concerned and thought the leaking I was experiencing was just incontinence and that the bleeding was menopause.
Of course I felt something different and after 11 visits to the gyn last year and my urologist I ended up in ER in Minneapolis Christmas Day. The Dr. there told me I was not crazy and I had every right to be concerned... at this point I was bleeding terribly very very heavy for 5 days. He gave me discs with ultrasound tests and an MRI that they had performed and said to get home immediately.
This cyst they told me not to worry about in March of 2012 ended up now being Stage 3 cancer. I had everything removed after a failed ablasion procedure (gyn still not believing I had cancer) he removed the cyst and I was called the next day with the pathology results. I was not surprised - I finally had an answer and thank God for second opinions
My oncologist is wonderful I am in the first rounds of chemo and then radiation and then chemo next. I should be done with treatments by the end of the year.
Ladies, follow your instincts - mine were telling me something more was wrong and to keep pushing. I have a daughter that has a very rare progressive disease and I take pride in seeing my doctors on a regular basis because I need to take care of myself in order to care for my daughter. My doctor was wrong, I was not menopause and I was not a hypochondriac.... I knew there was something more, unfortunately it was cancer that spread and it could have been caught if the Doctors pressed harder last year. I am at a VERY reputable hospital... but that did not matter in my case - it was my own ADVOCACY and fight to find the real answers to my health issues. I look forward to sharing and supporting others on their journeys.
3 Comments-
Carol-Charlie
about 9 years agoI played that game too. By the time my back surgeon spotted my 39 lb. tumor, I had Stage IV Ovarian... Spread to intestines, and urethra and one fat pad. I was then referred to a gynecologic oncologist surgeon, who (drum roll please) removed all my cancer. Had two years (almost) of chemo and have been cancer free now for 7 years. God bless that marvelous back surgeon!!!!
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KateMarie
about 9 years agoI am sorry you had to go through so much to get to the point of diagnosis. Thank God for your intuition and perseverance. I had an experience with intuition before my diagnosis too. My gyn found a large suspicious cyst on my left fallopian tube on an ultrasound when I complained of severe bleeding and she wanted to just remove it or also with the tube. Something told me, nope, they need to take everything, so I opted for a complete hysterectomy. When the pathology report came back, the cyst was benign, but surprise! There was cancer hiding in my uterus. I will never underestimate intuition again. I will be praying for you as you continue your chemo. I’m here if you need to talk. Kate
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