• kleslied's Avatar

    kleslied asked a questionBreast Cancer

    lymphadema

    10 answers
    • Debdawn64's Avatar
      Debdawn64

      I have kept mine under control with wearing a sleeve when it first starts bothering me. I also don't use affected arm for lifting anything or too much use. I also do massages in the shower and with the towel when I dry off. I always wear sleeves when I am flying. I also do my daily exercises. I have not ever used the wrappings, only sleeves. Good luck to you and I hope you find something that works for you.

      over 2 years ago
    • Ghound47's Avatar
      Ghound47

      There is a specific, very gentle massage technique for lymphedema which I was taught by a lymphedema specialist. I very much recommend seeing one to get started in treatment. Unfortunately, the wrappings would not stay up on my arm. I ordered a Juzo sleeve and gauntlet from Brightlifedirect to start off. Then ordered another from Lymphedivas just to be "cool".... their designs are fabulous. In just a week of doing the massage first then wearing the Juzo sleeve during the day, my arm is almost back to normal.

      over 2 years ago
    • smishik's Avatar
      smishik

      I have had Lymphedema for over a year. I had 10 sessions with therapist and insurance won't pay for any more. I had the wrappings and now I use the sleeves. I also use Lymphediva's. My oncologist told me to wear the sleeve constantly. So I do. I wear the night sleeve every night and the compression sleeve every day. The only time I take it off is when I shower or wash my hair or do the laundry. My arm is usually always hurting. I think it is from having my arm down like on a desk or something like that at work.

      over 2 years ago
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    Question: lymphadema

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    kleslied shared an experience

    Side Effects (Lymphedema): This is something new and unexpected. Because I had lymph nodes removed my system isn't working properly and my right arm is 3 times its normal size. I started last week and have it wrapped everyday like a mummy. I have no use of it what so ever and I didn't realize that once they get the swelling down I will wear a permanent sleeve for the rest of my life. Just when things start looking up I get knocked back down, but just like everything I have to keep telling myself it will be worth it in the end. I go the first of October now because they also believe I could have rheumatoid arthritis another chemo blessing. When will it end?

    2 Comments
    • 10allyoop's Avatar
      10allyoop

      Faith is the bird that feels the light and sings in the darkness before the dawn.

      over 2 years ago
    • MCooper's Avatar
      MCooper

      Try physical therapy...I did and it helped me.

      over 2 years ago
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    User: kathyk333

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    kleslied wrote on kathyk333's wall

    I didn't have any infections with tamoxifen, other than early menopause. Most of my issues are now with lymphadema and 2 years from diagnosis I still haven't been able to do reconstruction. I do have a question about yours. Was it a full reconstruct with skin graphs or was your breast removed after treatment. How long was the recovery and what were your limits?

    1 Comment
    • kathyk333's Avatar
      kathyk333

      Hi there! I had a skin saving mastectomy. Temporary implants called tissue expanders were put in immediately and over time they get expanded to create the right size pocket for the permanent implants under the muscle. Nipples were constructed via skin graft. All in all it took 4 surgeries. It should've taken 3 but I ran into a complication with a spot of necrosis. I am happy with the reconstruction. The longest recovery was after the very first surgery which was the mastectomy & temp implants. That took about 4 weeks recovery. For surgery stayed 3 days in hospital then first 11 Days home no shower, then drains removed. Then next 2 weeks, healing. The next 2 surgeries are outpatient. Reconstruction was a process that unfolded over the course of 9 months. I hope that helps. :)

      over 2 years ago
  • kleslied's Avatar

    kleslied shared an experience

    Loss (Lost loved one): I lost my sister this past week to her fight with cancer. Hers started as cervical cancer, but recovered then it returned in her stomach, recovered then returned. This time surgery was not an option but she started and aggressive round of chemo but 2 day later the cancer had spread to her brain without warning and she was gone. She was planning to come home that day. Instead of my father flying out to California to help her, I also flew out the next day to bring her home and pack up her things. Its been such a mess, none of us expect to go me least of all, but people do your family a favor make a will or power of attorney. Put your cars in someones name TOD and do the same with your bank accounts, otherwise your family will be so busy there will be no time to mourn you. We have had everything on hold because our hands were tied on doing anything until we received the death certificates. So now here over a week later, now we can plan a funeral. It's been psychically and emotionally draining and has taken a toll on my own recovery. I pray no one has to go through what we have and can just mourn and put our loved ones to rest.

    10 Comments
    • dxdiva2's Avatar
      dxdiva2

      I am so sorry to hear about your sister and the toll her passing has taken on you and your family. Too many of us put off doing things like a will or power of attorney etc until its too late. My daughter in law says her mother remembers what a burden it was to deal with all of the many things her mom had when she passed. So now she goes through her stuff once a year just to make sure her daughter will not be left with a house full of things to decide what to do with.

      You're right that it should be a time to mourn her death and celebrate her life, I hope it gets easier for you. God bless!

      over 2 years ago
    • Raider11's Avatar
      Raider11

      Wow so very sorry about your sister. Thanks for the advice.

      over 2 years ago
    • Anamaria's Avatar
      Anamaria

      I know what you are going through. My mother put someone as her executor and it has been XXX. She wanted to change it but was too sick to make the change. I can not stress how important it is to make sure everything is in order and you have the right person in charge of everything. The only thing that makes this process some what possible it that this person and I have equal power of attorney. It is almost a year since my mother lost her fight with cancer and her estate is still not settled. Now I have cancer and it is not a good situation to be in. Please please have every thing updated and in order. With chemo and the side effects you never know what will happen from one day to the next. I pray things work out for you and that God give you the strength and patience to get through this difficult time. Remember to be kind to your self.

      over 2 years ago