• KLStone's Avatar

    KLStone started following

    User: CancerNews

  • KLStone's Avatar

    KLStone shared an experience

    Drug or Chemo Therapy

  • KLStone's Avatar

    KLStone started following

  • KLStone's Avatar

    KLStone shared an experience

    Drug or Chemo Therapy (Chemotherapy): oral chemotherapy: thalidomide & Revlimid
    injected chemo: Dacogen (decitabine) - low dose protocol

  • KLStone's Avatar

    KLStone shared an experience

    Oh No (Diagnosed): Myelodysplastic Syndrome (MDS) diagnosed 2004 following routine physical exam, slightly low platelets and WBC.
    It was a SHOCK, MDS is so deadly; my wife Nancy and I couldn't believe how bad it was. I had never had health problems and had never been in a hospital overnight in my entire life.
    The first hematologist who did a BMB said we would just "watch it". I already knew from seaching the internet that I was in an advanced stage at RAEB-1 with 8% blasts, I didn't want to just watch it. I found a good hematologist who would treat the MDS aggressively. Dr. Ranga Brahmamdam at the Outpatient Cancer Center of TriHealth, Good Samaritan Hospital has been a wonderful doctor, I also have a wonderful nurse, Cynthia Rahe, who has administered treatments for over 8 years. We love both of them.

    Before starting my MDS Journey I would like to offer some suggestions:
    • Educate yourself on MDS
    • Find a doctor you are comfortable with who has experience treating MDS patients
    • Keep a positive attitude and never give up
    • Take advantage of Patient Conferences such as those offered by the AA/MDS Intl Foundation and the MDS Foundation.

  • KLStone's Avatar

    KLStone posted an update

    My AML is a result of MDS-Myelodysplastic Syndrome, hence my AML is secondary to the MDS.
    I've had great success in controlling the MDS/AML with the assistance of Dr. Ranga Brahmamdam of Tri-Health in Cincinnati, OH