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    Other Care (Hospice): Appt in hospital with Hospice liaison. Intake appt set for Saturday 6/9. Received call from Hospice for a different county. Some confusion re: county of residence vs. county of PO. Switching to county of PO - says all is approved. Intake appt changed to Thursday 6/7. Need to make sure can still get transfusions at hospital in county of residence where we know everyone.

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    Decision Point: Decided to accept referral to Hospice provided transfusion can still be received.

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    Other Care (Palliative care): Meeting with Palliative Care Team on 6/5. Learned that transfusions are possible with hospice care. May have to be symptom based, rather than regularly scheduled. So instead of going to oncologist every Mon and Thurs for CBC, would wait til felt like needed transfusion, call Hospice, nurse would draw blood and send to lab, oncologist would review and make appt for transfusion. Might be 48 hour lag before receiving transfusion. Husband seems OK with this.

    Team intimates that it is weeks or months til death, but that no one can predict.

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    Oh No (Return to hospital): Sore throat - fever 102. temp down by the time we reached ER but hospital decided to admit & start IV antibiotics and oral antifungals. Also ankle very swollen and painful. Ultrasound for blood clot negative. X-ray shows no fracture. Nurse wrapped and swelling decreased. Recommendation to keep wrapped and Tylenol around the clock.

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    Celebration (Sister came to visit)