• kos56's Avatar
  • kos56's Avatar

    kos56 asked a questionLung Cancer

    New Symptom shortness of breath, oxygen levels went down to 80s this morning.

    • CAS1's Avatar
      CAS1

      Oh my goodness I am so sorry. This is just brutal for you and your loved one.

      The Dr's can give him a number of things to calm him down and to let him sleep. The agitation can be adding to his shortness of breath.

      I don't have answers other than to say a prayer for you both. Make sure you are taking care of yourself too as this can be so overwhelming. I am so sorry.

      almost 4 years ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I wish I had answers for you. I can only send my good wishes for you both. I'm so sorry you both have to endure this.

      almost 4 years ago
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  • kos56's Avatar

    kos56 asked a questionLung Cancer

    Symtoms: Confusion, anorexia, strange thoughts, angry outbursts, extreme weight loss, falling, weak, sleepinesss

    • AlizaMLS's Avatar
      AlizaMLS

      Dear kos56,

      I'm not sure if we've corresponded before, but excuse me if we have. I'm Aliza, a BC patient, and the site's unofficial Medical Librarian. I was a Stage I patient, but my late father had CLL for 6 years and died 4 years ago so I understand where you're at.

      One thing I can suggest to you that you may find helpful is for you to contact CancerCare. The Social Workers who work there are specially trained to deal with the highly specialized needs of Cancer patients and their Caregivers. You sound exhausted. You sound as if you really need a break. These folks will help you find ways to do so far better than I can. They are wonderful and caring to speak with. I cannot recommend them highly enough.

      Another thing I can suggest to you is that if you belong to a religious community, now is a great time to contact your clergyperson and have her/him pay a visit. All these folk are used to dealing with ill congregants (whether they are hospital chaplains or not) and sometimes congregations have "sunshine committees" who help out by taking folks out to appointments, shopping etc. during difficult times.

      You may also want to contact your husband's insurance company to see what he is entitled to as far as home health aides are concerned. It sounds like you're going to burn yourself out. I know from whence I speak. My fiance is a widower whose late wife had ALS (Lou Gehrig's disease) and he did everything himself (he has PTSD from that experience). He's also my caregiver, but fortunately, I'm into my 7th month cancer free, so it's a lot different this time. Don't be a martyr and do everything yourself. It's ok to let others help. If you have family-children, or your husband has siblings, by all means let others share in his care.

      If you can arrange for all these other things, one other thing I can mention for you is self-care. Very important. You need to do things for yourself. You are more than your husband's caregiver. You are you. You need to get out and do things for yourself. Go for a mani/pedi, go to the library (I'm a librarian, what would you expect?!...;)) Go shopping and to lunch with friends, join a monthly book group near home. If there's no book group and you like to read, go online to wwwdotgoodreadsdotcom (sorry I had to write it that way-if I wrote it normally, it would be redacted and you wouldn't see it). That's a fun site where you can track the books you've read, write your own reviews, read others' reviews, make virtual friends, occasionally enter contests to win books, join small genre bookgroups etc. You can also do this from the privacy of home.

      I know I'm not in your situation and my late father wasn't exactly either-he had just become so weakened from his chemo and endured so many bouts of pneumonia (as a secondary infection) and kept being routed from home to the hospital to the rehab center to home that finally he decided he wanted to die (enough was enough). None of us could blame him. He really stuck it out.

      I hope you find some of my suggestions helpful to you. Let me know if I can help you in any other way. I hope your husband is comfortable and I hope that you get the opportunity to get breaks for yourself. You deserve it!

      Warm Wishes,
      Aliza

      almost 4 years ago
    • ladyhawk's Avatar
      ladyhawk

      angry can take over at times! :(

      almost 4 years ago
  • kos56's Avatar

    kos56 asked a questionLung Cancer

    How effective is Tarceva for Stage IV metastatic Lung Cancer with Kras mutation ?

    • CAS1's Avatar
      CAS1

      Tarceva has the best chance of working with an EGFR Mutation. But it can also work without in some people. There is a great deal of work being done on the Kras mutation because its so common in L/C . There are certain chemos that are more effective with KRAS.
      The side effects of Tarceva are usually mild and to get it with Radiation gives the best outcome. If he responds to the Tarceva it can last for quite a while and there are numerous drugs in pipeline to counteract the resistance that eventually builds up in Tarceva.
      Make sure you are getting treatment at a top line Lung cancer expert facility.

      Also ask about clinical trials. So much is in the pipeline that holds real promise even for advance stage. I am posting some data now.

      about 4 years ago
    • kos56's Avatar
      kos56

      Cas 1 Thank you You are a treasure on this site. God bless you. Karen

      about 4 years ago
    • CAS1's Avatar
      CAS1

      Thank you Kos,
      We are going to hear a lot of data coming up after my 31st when the American Society of Clinical Oncology starts their meeting in Chicago. KRAS is a hot topic and lots of research being done because its common in multiple cancer lines too.
      That new PDL-1 is really hot..22% response in LC..thats one its own without chemo.

      Hold on there is real hope.

      about 4 years ago
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