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    Drug or Chemo Therapy (Chemotherapy): Started chemo in mid June. Felt good throughout most of the summer. She was still eating, and a little more tired than usual but was able to go on with her life. Starting in October and for the last two months she has been unable to eat, and progressively gets worse. She has lost weight, has no energy and is very weak. She is at a point right now where she has trouble walking, and had to cancel a Christmas vacation due to this.

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    Oh No (Diagnosed): My mom went in to fluid build up in her abdomen. May 2012 was full of tests upon tests to see what caused it. First it was ovarian cancer, then colon, then finally appendix. She started chemo mid June and besides the fluid build up felt perfectly normal. My mom is very active and up until about halfway through her chemo still went skiing, swimming, etc.

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    Question: Appendix cancer

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    kperera asked a questionRare Cancers

    Appendix cancer

    5 answers
    • fastdog's Avatar
      fastdog

      I am 67 years old, in "average" physical condition, and had HIPEC surgery for cancer of the appendix in June 2012 and did just fine. I would be curious to know why she is not a candidate for HIPEC. If you haven't done so, please also check out the PMP Pals website (pseudomyxoma peritonei) for specialists in this area and lots of additional advice and support. They have some very helpful literature. I would certainly seek a second opinion from someone who deals in this cancer. I had surgery at U-Mass Medical Center in Worcester MA and was very pleased with the result. Whatever you do, don't give up. If there's anything you'd like to know about my experience, I would be more than glad to help.

      almost 5 years ago
    • reed4vols' Avatar
      reed4vols

      I am wondering why surgery is not an option...you might get a second/third opinion. I have heard of many who were told one thing at a reputable institution only to find success at another. Did you speak with an appendix cancer specialist? I was told something similar at first...long term chemo options that aren't very successful, then was told about this "radical" surgery. Turns out it's the standard of care for appendix cancer! I had to travel to Wake Forest for HIPEC (twice!) but it has given me the gift of time.

      almost 5 years ago
    • abrub's Avatar
      abrub

      There are excellent drs at Sloan Kettering. I go to Dr. Paty, who did my surgery, and then I had IntraPeritoneal chemo. They have to be able to surgically remove visible tumor to a couple of millimeters or smaller for IP chemo or HIPEC to be effective. Please be sure that your mother consults with one of the Appendix specialists in colorectal surgery there: Dr. Paty, Dr. Nash and Dr. Guillem are the 3 names I know. Make sure that her medical oncologist has been consulting with one of them.

      A med onc at MSK gave me a totally different treatment plan and prognosis than did Dr. Paty. I'm now 5+ years out, and doing great.

      almost 5 years ago
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