• KXW's Avatar

    KXW shared an experience

    Radiation (External radiation ): Process not bad but husband has esophagitis. So painful and he loses 20 lbs. it's taking forever to heal. Cancer continues to grow. Beginning to feel like Job. People at the stores are busy shopping for Xmas gifts. Many rude and thoughtless. Why is this striking us. Cancer attacking us feels personal. Why does my 10 year old have to go through this a second time.

    1 Comment
    • Gma's Avatar
      Gma

      I am so sorry that your husband is having so much difficulty. I know that it doesn't seem fair. It is so hard, but please try to stay strong. Do you get treated in Charleston? Have you thought about another center? MD Anderson in Houston, Texas is excellent. Don't give up. I will be praying for you all. God Bless.

      about 4 years ago
  • KXW's Avatar

    KXW shared an experience

    Clinical Trial: Last therapy stopped working and now onto ct. Drug is referred to as late-stage drug. Not sure if this means the patient is late-stage or this is the latest in a class of drugs. Either way. Kinda scary thinking it may not work. More likely than not it will work for a little while. How long it will work and what comes next is hard to fathom.

  • KXW's Avatar

    KXW shared an experience

    Drug or Chemo Therapy (Chemotherapy): High dose chemo. Blood counts close to zero. Scary to have no white cells left. Waiting. Surprisingly, tho, it seems to have worked. Cancer is halted in tracks, myeloma protein is going down. Big relief and a little hope creeps not our lives again.

  • KXW's Avatar

    KXW shared an experience

    Side Effects: There is no 'any and all' choice for sides effects. Lots of them.. Keep thinking that there must be a silver lining here.

  • KXW's Avatar

    KXW shared an experience

    Drug or Chemo Therapy (Chemotherapy): The new miracle drugs for myeloma work in 100pct of patients. We soon learn that husband is outlier because they are not working. Are we cursed with bad luck?

  • KXW's Avatar

    KXW shared an experience

    Oh No (Diagnosed): Yuck. We have both lost spouses to cancer. How is this happening again. First thought This cancer looks to be treatable.