• chiefomni's Avatar

    chiefomni wrote on Kymmy's wall

    I am an esophageal cancer stage III survivor of 20 years. I have been through Chemo, radiation and surgery. We created the Esophageal Cancer Education Foundation (ECEF) www.fightec.org in part to help patients with their journey through this disease.

    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get it at any book store.

    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org

    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue. Calls are in the evening at 8:00PM (EDT).We have two Thoracic surgeons that attend each meeting Go to https://fightec.org/services/ get more information. You can send me an email at [email redacted].

    We also have a conference call support group for recurrence and stage IV patients. This group meets on a monthly basis and we have a medical oncologist that joins each call. If you are interested please send an email to [email redacted]

    We also have a 24hour hotline to help with quality of life questions as well. The number is on our web sitehttps://fightec.org/services/

    We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.

    We look forward to hearing from you

    Take care and stay safe.

    Bart Frazzitta
    President

  • Kymmy's Avatar

    Kymmy shared an experience

    Decision Point (I had to choose surgery 90 % success . Possibly of vocal cord injury. Or chemotherapy and radiation treatment not recommend ): I did not want to have my granddaughters to be afraid of me being ill

  • Kymmy's Avatar

    Kymmy shared an experience

    Procedure or Surgery (Surgery): Removal of esophaguses and made new one out of my stomach.
    Life changed quickly stomach digestion, food intake, learning ,amounts
    Bowl changes . Scar tissues, after first year 1/2 I feel great

  • Kymmy's Avatar

    Kymmy shared an experience

    Oh No (Just Diagnosed): Had EDG for stomach pain ,Diarrhea, expecting stomach issues not esophaguses cancer . I asked it’s ok right , he said we have a lot of work to do .

    1 Comment
    • BILLY22's Avatar
      BILLY22

      Good morning young lady what is your current stage, it must be early if chemo/radiation not recommended. I also recommend a second opinion on your diagnose. I am a 18 year Stage III second opinion survivor , chemo/radiation and a MIE esophagectomy . You can overcome all the symptoms you have mentioned.

      25 days ago
  • Kymmy's Avatar

    Kymmy started following

    User: GregP_WN

  • DaveWaz's Avatar

    DaveWaz wrote on Kymmy's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter