• Labrooksie's Avatar

    Labrooksie asked a questionColorectal (Colon) Cancer

    Supplies

    5 answers
    • Labrooksie's Avatar
      Labrooksie

      I haven’t had my reversal yet. But these are things I don’t use and hate to see them just sitting there when they can maybe help someone else. Hopefully my trip to reversal will start in 6 weeks!

      4 months ago
    • JaneA's Avatar
      JaneA

      I donated my surplus supplies to a War Veterans Home. They were grateful to get them as quite a few of their patients had ostomies from being wounded.

      4 months ago
    • GregP_WN's Avatar
      GregP_WN

      Someone can surely use them. I was getting low on HME stoma filters for my laryngectomee stoma and posted on a site for laryngectomees and someone offered to send me a couple of boxes until I could get my order.
      I really appreciated the help.

      4 months ago
  • Labrooksie's Avatar

    Labrooksie started following

    Question: Supplies

  • Labrooksie's Avatar

    Labrooksie asked a questionColorectal (Colon) Cancer

    Strawberry question

    5 answers
    • Tspitzley63's Avatar
      Tspitzley63

      I also have a colostomy. But I eat seeds. I know it might be different with the ilostomy because I have the majority of my colon. I was fortunate enough to have a dietician and naturalopathic doctor at CTCA who helped me understand the nutritional part. Maybe your oncologist could refer you to s dietician or nutritionist.

      4 months ago
    • JaneA's Avatar
      JaneA

      I have a colostomy and can eat strawberries just fine. With an ileostomy, you have to be a little bit more careful. I'd start off by eating just a couple and see how you do. And build up - like LoriK said, be sure to chew thoroughly.

      What you need to avoid is foods that are stringy, like coconut and asparagus, and foods with tough skins like apples and cucumbers. These can clump up and cause a blockage which might require a trip to the ER - during the COVID-19 crisis, you want to avoid that. So just take it easy.

      Here is the link to a really good chart from Memorial Sloan Kettering:
      https://www.mskcc.org/cancer-care/patient-education/diet-guidelines-people-ileostomy

      4 months ago
    • Bug's Avatar
      Bug

      It's not a crazy question.

      4 months ago
  • Labrooksie's Avatar

    Labrooksie started following

  • GregP_WN's Avatar

    GregP_WN wrote on Labrooksie's wall

    Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

    If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

    We may have an opportunity for you to make your voice heard by allowing us to share your information with our partner Rare Patient Voice (www.rarepatientvoice.com) and be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

    For now, what is the biggest issue that you are facing? Please post what you need to know on the questions page and others will help you.

    Thank you for joining us, if you have questions please contact us.
    Greg_P
    4X Survivor
    ACS Voice of Hope

  • Labrooksie's Avatar

    Labrooksie started following

    Question: Food/Eating