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    lady1 shared an experience

    Celebration (Remission): YEAH- PET showed no cancer!

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    lady1 asked a questionHead & Neck/Throat Cancer

    8 Weeks Post Radiation

    4 answers
    • dbellamore's Avatar
      dbellamore

      you do load up on antibiotics when you go to the dentist, right?

      about 4 years ago
    • kenw's Avatar
      kenw

      I had SCC, base of tongue, left side.
      I was told that, is addition to the destruction of the tumor and any/all salivary glands in the path of the radiation beam, the capillarys of the adjacent mandible were probably also destroyed. If I underwent any oral surgery that involved the bone structure, I had a very good chance of getting osteonecrosis. Hyperbaric Oxygen Therapy (H.O.T.) has been proven to be beneficial in the majority patients in inhibiting the occurance of any post oral surgery complications.
      Post-chemo and radiation, I required some oral surgery (to plane down the left lingual side of my mandible due to exposed bone). Prior to the oral surgery, I had to go through an intensive (two 90-minute sessions, twice a day, Monday through Friday for seventeen (17!) days)) regimen of HOT. This HOT was to aid in the healing of the tissues disturbed during the surgery. Post-oral surgery, had more HOT, but only for ten sessions. And it worked! I experienced rapid healing with NO complications.
      Now, what does this have to do with what you are experiencing post dental prophylaxis? Probably nothing, but your dentist, oncologist, and radiologist should all be made aware of what is going on.

      about 4 years ago
    • BLBragg's Avatar
      BLBragg

      To speak to the first part of your concerns, I would contact the dentist and ask him if he knew why you had such an increase in pain after his treatment. As to taking 5 steps forward and 3 steps back, in our case YES that is totally normal. Good days and bad days. Initially my husband took one step forward and three steps back, then as time passed he had more better days than bad days and now (1 1/2 yrs later) he has all good days :) There are still some challenges with saliva function but acupuncture and my super shake packed full of vitamins seem to be helping with saliva production. Healing takes a lot of time, but you will get there. Sending good thoughts your way!

      about 4 years ago
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    lady1 asked a questionHead & Neck/Throat Cancer

    Cough after radiation base of tongue cancer

    4 answers
    • carm's Avatar
      carm

      Lady1, if the cough is happening when you sleep, try putting vicks on the bottom of your feet before you retire to bed. If it is an intractable cough, there are options not normally used. One of those options is a morphine or a lidocaine nebulizer. If it is a dry cough, Tessalon Perles is very effective. Ask your oncologist. The nebulizers are made by pharmacy on a need basis. Best of luck to you, Carm.

      about 4 years ago
    • BLBragg's Avatar
      BLBragg

      Since you are ONLY 3 weeks post radiation I can imagine that your throat is still quite sore. What helped my husband with the coughing were lozenges that Do Not contain alcohol. Make sure you check the package. The alcohol will irritate your throat. He also used chloraseptic spray but that burned his throat. Fruit flavored lozenges should help you manage the cough. Hope this helps :)

      about 4 years ago
    • lady1's Avatar
      lady1

      Thanks- how long before things start to turn around? I know everyone is different but curious as to what others found in terms of when the sore throat started to diminish and energy started to return?

      about 4 years ago
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    lady1 posted an update

    My husband just diagnosed- tons of questions and not a lot of answers at this point.