• lafaymom's Avatar

    lafaymom shared an experience

    Clinical Trial (Breast Cancer clinical trial- ): different chemo drugs for different length of time for stage one triple negative breast cancer

  • lafaymom's Avatar

    lafaymom shared an experience

    Oh No (Relationship issues): I have been disabled for 29 years and have gradually withdrawn from social functions so that the "friends" I had have vanished. My daughter lives out of town, my 34 year old son as problems- he is helpful but I don't want to lay a heavy burden on him and my husband means well but he had a stroke it changed his personality so that he is not the most supportive person. My Mom died of Ovarian Cancer Father along with brothers and sister well there are conflicts. So I don't feel any real support other than "well if there is anything I can" as they hang up or walk out the door.

  • lafaymom's Avatar

    lafaymom asked a questionBreast Cancer

    To join or not to join that is the question

    9 answers
    • Clyde's Avatar
      Clyde

      If you can, get the name of the trial and do some research on it, get a second opinion (this you have to do) ask the Dr why he wants you to do it and then decide. I'm always cautious when being pushed towards a trial as sometimes the center or Dr may be being paid to get patients into one (Doesn't mean its a bad trial, but doesn't always mean its the best thing for you.).

      My onc was pushing me to get into a trial, but after research (including here) I found it had mixed to poor results to date and I declined. 6 months later, the posted results have not shown any improvement and even my onc has admitted it isn't the holy grail they had hoped.

      over 4 years ago
    • Berley's Avatar
      Berley

      I was diagnosed with TNBC and was part of a clinical trial. I reviewed the information on the trial before making my decision to join. I was told I could drop out of the trial at anytime and that I would recieve standard Chemo treatment if I decided to drop. I chose to stay in the trial for the duration. I felt like there was great attention to detail and the qualty of care given due to the documentation needed for the trial. There was strict protocal that had to be followed and documented. I made the right choice for me. And as others have said it felt like I was also contributing something that might be of help for others in the future. For sure ask for and review the trial information. And as said by others, it doesn't hurt to ask second opinion if you still aren't sure.

      over 4 years ago
    • SusanK's Avatar
      SusanK

      Hi. I was diagnosed with TNBC, Stage I and I am 61. I am nearly a year post treatment (bi-lateral mastectomy and six doses of taxotere and cytoxan). Feel free to request my email address if you'd like. I was not asked to particpate in a clinical trial, although I inquired about doing so. My oncologist suggested waiting to see how my chemo went. I was going through reconstruction at the same time and I think he felt for the time-being, I had enough on my plate. I followed his advice. I wish you well as you move forward, whatever you decide.

      over 4 years ago
  • lafaymom's Avatar

    lafaymom shared an experience

    Decision Point (to join or not to join Clinical Trial): because I have Triple Neg. they are pushing me to join but I feel like I am being pushed without regard of what is best for me

  • lafaymom's Avatar

    lafaymom shared an experience

    Procedure or Surgery (Lumpectomy): I have long term Chronic Pain on the side of the body which has been affected by Breast cancer so this affects and slows recovery

  • lafaymom's Avatar

    lafaymom started following

    User: GregP_WN