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    Lafflady asked a questionBreast Cancer

    I am learning I may have chemo-induced peripheral neuropathy. Is there a specialist who can help me deal with this chemo side effect?

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    Lafflady posted an update

    I am still struggling with having just figured out I have chemo-induced peripheral neuropathy. I complained of the light-headedness and tingling in my hands, which will go numb ...feels like they fell asleep. I also have coming-and-going pains in my feet. The light headed-ness has caused me to fall on ocassion... once requiring three stitches in my head. I got some help from this sight before and took it too my doctor. He did blood tests, and said my results were fine. Guess he's not the man. My oncologist had no idea what it was. My cardiologist just told me to keep my hands below my heart. My PC thought it might be a cyst on my wrists... which I have now had removed. Anyway.... is there is name of a specialty or a doctor who helps with living with the side effects of chemo.
    I also recommend making several appointments and get several opinions on the best route for you and your cancer. Chemo should be the last resort. So far it's been worse than the surgery and radiation, which may have been enough for me since it was caught early and was in situ and very small etc....

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    • GregP_WN's Avatar
      GregP_WN

      Hi Lafflady, thanks for being here on the site and posting! If you haven't done it already, post this as a question in the questions tab on top of the page. This will let everyone see it and respond to it.

      Thanks, and let us know if you need anything to make your site experience easier!

      Greg P
      Team WhatNext

      about 4 years ago
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    Lafflady shared an experience

    Side Effects (Nerve damage (peripheral neuropathy)): I am a year out of all chemo and radiation and have just now diagnosed myself with peripheral neuropathy. Why, when I mentioned all the various symptoms, none of them put them together is really aggravating. So google chemo-induced peripheral neuropathy, get the symptoms and see how many you have, I have: poor balance (falling too much) , weakened muslces, tingling in the hands to the point of numbness, creepy leg muslce tics, odd feelings in the feet. I've ready there is stuff out there to help repair those damaged nerves. I seriously feel the doctors should have been on this sooner and saved me months of fear.

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    Lafflady shared an experience

    Side Effects

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    Lafflady posted an update

    I took nancyjac's advice. I also found a good site called "i can cope" with on-line classes on how to do such things as talk with your family. I learned that I needed to tell friends and family what I need... I need someone to just listen to how I feel every once in a while. Asking someone "How are you?" elicits the response, "Fine, how are you." Same with "How's your day," etc... I told family and friends that I needed to be asked "how do you feel...how's that hand..or whatever." Friends picked up on it right away...and were even able to joke, which I need, "Oh...for got to ask... HOW DO YOU FEEEEEL.." We laugh, and then I tell them I felt like XXX until I found the frozen pork loin in the guestroom on the bed, and/or my hands are soo numb I can't play video games..etc. But with the family... I only have one son and his wife to consider in "the family", I am still only getting "how was your day." They just don't get it. If the depression is bad, I'll slide into the "they just don't care" arena. I just have to smack myself in the head and talk myself out of that thinking. The hardest part of cancer depression is that it is easy to slide into feeling like a real victim. With my garden variety depression, it was easy to say, "geez stop taking everything so personally... the world doesn't revolve around you. They love you, stop." But since cancer, it's harder and harder not to that "if they really loved me or really cared, they'd want to know how I am feeling." Still gotta say "STOP" to myself. My battle with neuropathy is not at the top of their list of concerns: they have a baby and my son has a new job....and my daughter-in-law...bless her heart... you Southerners will understand that .... enough said.

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    Lafflady wrote on nancyjac's wall

    thanks for your advice about the family.. I think I will try and find them some literature. I hope I don't really sound like a moaner-whiner... but I am quick to say how I feel. Since you are in the midst of treatment according to your wall, feel free to read my blog...I go through a day by day and week by week sage. Just put "Diana's battle with breast cancer" into your google search... I'll pop up.

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    • nancyjac's Avatar
      nancyjac

      I was in active treatment when I first joined this site almost a year ago and that was my second breast cancer.

      about 4 years ago