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    User: tslager01

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    laleclair asked a questionNon-Hodgkin Lymphoma (NHL)

    I'd love to hear from some Lymphoma patients about what, if any, diet changes you adopted after treatment?

    8 answers
    • 1Survivor4life's Avatar
      1Survivor4life

      I was a good boy until I hit the five year mark. I then decided to enjoy life and quit living like there is a shoe waiting to drop. I tried new things and enjoyed the simple ones like a great steak and a fresh salad. I eat more fiber and vegetables because I should and not because I had cancer. I don't eat Salsberry steak anymore. Once my favorite and then chemo took that from me. All I can say is bad experince.

      over 4 years ago
    • debbie1951's Avatar
      debbie1951

      Hello laleclair,
      My diet changed after diagnosis to a nearly vegan diet. Trying to eliminate dairy, except for yogurt. A dietician in the Cancer Transitions Program recommended a diet high in brightly colored fruits and vegetables, lean protein, and limited carbohydrates. No diet sodas or artificial sweeteners. Lots of water and low fat. Only olive oil. Hope this is helpful.

      over 4 years ago
    • lymphalive2day's Avatar
      lymphalive2day

      I also had primary mediastinal Large diffuse B-Cell lymphoma 12 years ago. I am very interested in nutrition.

      At first, (right after radiation) I consulted a naturopath and went on macrobiotic diet with a lot of sea vegetables. My blood counts returned to normal very quickly and I lost the chemo/steroid "water balloon" I was carrying. I felt very good, but after 4 months was loosing too much muscle mass and felt weaker. It was also very difficult to follow. I added back more animal protein and variety of vegetables and grains. I had been vegetarian/vegan for longer periods of time in my 20's, before I developed the lymphoma.

      I have since discovered I have the antibodies against gluten and have been gluten free for @ 4 years, that has made a great difference. Today (4 years) I am very healthy on a my OSU doctor's recommended neutrogenomic diet of small amounts of fish and grass fed meat, milk and pastured eggs with no gluten and plenty of vegetables and fruits. I avoid plant oils and seeds and I get more of my carbs from potatoes/sweet potatoes/ squash and less from grains, no gluten. I also take fish oil, B complex, Vit D, etc. My doctor, Glen Aukerman, MD, has recently published a book called "Better Health in 120 Days" http://www.woosterbook.com/additional/betterhealth.html. All my inflammatory markers consistently stay low and I don't have the arthritic pain I was troubled with. I can support an active full time job and exercise. I sleep well and have a happy mood. I am very happy with this over time and my health is the best it's ever been, even though I will be 50 next year and survived this massive tumor.

      My heart tests last year were better than expected. (There had been some concern about post radiation cardiomyopathy after the large field of radiation). although I did have some damage after treatment, for the most part my heart muscle and coronary arteries have healed well since my last testing 5 years ago and ejection fraction is up to 65% now. My bone loss, rapid after cancer treatment, has finally stabilized. So I'm still getting good improvement over time on this diet and it is very do-able in the world/family, whereas on a totally plant based diet I had chronic inflammation and generally felt weaker and caught colds more easily.

      about 4 years ago
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    User: nobrand

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    laleclair shared an experience

    Celebration (Finished treatment): After two rounds of treatment, I was given a PET scan and we learned that my tumor was responding very well to treatment. Fortunately that has continued on my scans since then. I just finished chemo after 8 rounds, and I'm thrilled to be done. My doctor doesn't think I'll need radiation, but we'll know for certain after my next PET and CT scan on Oct 8.

    1 Comment
    • debbie1951's Avatar
      debbie1951

      Hi Laleclair,
      Welcome to WhatNext. It is great to hear how well you are responding to treatment. Hope you do not need radiation, but radiation is much easier than chemotherapy, so you would do just fine. Let us know how you are doing after your October 8th PET/CT scan. We are praying for you!

      over 4 years ago
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    laleclair shared an experience

    Drug or Chemo Therapy (Chemotherapy): R-CHOP is no cake walk. I feel like I had minimal side effects that were well managed with medication thanks to my doctors at Park Nicollet Methodist's Frauenshuh Cancer Center. My primary complaints are fatigue, nausea, headaches. I'm fortunate that I can be away from work, I don't have kids, and I can take a nap everyday--that really helps me manage.

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    • nobrand's Avatar
      nobrand

      I feel lucky as well, I don't have any kids (other than my cats/partner).. so I am on an aggressive nap schedule of whenever I want! I'm only awake for like 6-8 hours a day for the week after treatment. I'm glad you've had minimal side effects from chemo.. it can get crazy!

      over 4 years ago