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    lchapman2000 started following

    Question: Thank you!!

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    lchapman2000 asked a questionEndometrial (Uterine) Cancer

    Thank you!!

    8 answers
    • carm's Avatar
      carm

      Thank you all, and to all my sisters and brothers of the lamp, I salute you, Carm RN.

      about 4 years ago
    • BoiseB's Avatar
      BoiseB

      I want to second your thank you

      about 4 years ago
    • AlizaMLS's Avatar
      AlizaMLS

      Thanks for sharing all of your wisdom with us Carm!!...;)

      about 4 years ago
  • lchapman2000's Avatar

    lchapman2000 wrote on preyes's wall

    Hi Preyes,

    Welcome to the site!! I hope you find it to be as supporting as I have found it to be. I see that you will soon be going through chemo and radiation. I am a few years younger than you and I have been diagnosed with endometrial cancer. I am currently in remission; however, I can still remember the shock and fear that I initially felt. It all seemed to happen so quickly. For me, it was not nearly as bad as I had imagined in my mind. It is most important to rest and relax and take care of yourself during this time. Take a notebook when you see your oncologist and write everything down. It will be hard to remember it all. Lean on your family and friends during this time and allow them to help you. They want to help but really don't know how or what to do unless you tell them. For me, going to pick up groceries was a big help. My sister would do this for me a few times a month and I appreciated it so much. The fear you feel is because you don't know what you are facing. Knowledge is power. The more you arm yourself with knowledge about your disease and how you are fighting it the more powerful you become. Remember to take it easy on yourself too. There will be days. We all have them. These days will hit you hard and you will feel terrible but the next day you will bounce back (or at least I did). When those days hit...sleep, cry, scream, pray, vent to a friend, eat comfort foods, do whatever you need to do to get through it and be kind to yourself. Then realize that you are in a battle and move on fighting. I won't lie and say that it will always be easy but it definitely was not near the experience that I had imagined in my mind. After a while, it became my routine. It was my purpose to fight this invader in my body. If it comes back. I will fight again. Anyway, I am here if you need to talk. I hope you have an easy journey. Best of luck!!

    4 Comments
    • lchapman2000's Avatar
      lchapman2000

      I don't mind at all. First let me say, that though some side effects are the same and are common for most people, not all of us experience the same things. Make sure you ask your oncologist what long term and short term side effects you could expect. I started off on placlitaxol/carboplatin for chemo and after my first infusion it was evident that I had an allergic reaction to the taxol. I had severe bone and joint pain to the point that I could not walk. My oncologist switched me to Taxotere/Carboplatin for the remainder of my infusions. I lost my hair by the 2nd infusion. I only had about 2 bad days per cycle they were the 3rd and 4th days after my infusions. I would take pain meds to stay ahead of the pain and sleep most of those days. Those days you may want help taking care of the family. My taste buds were altered and I had no appetite but I wasn't nauseated like I had imaginEd I would be. The premeds and meds they give you to take at home help with that. I was always tired. Fatigue and lack of energy was my biggest complaint especially after I started radiation. I required a nap daily. The radiation did a number on my stomach and made it difficult for me to eat. I am still dealing with some complications from over radiation. I told my oncologist to hit it hard and aggressively so I have no anger towards my medical team. Just know that there are risks and benefits and discuss them both with your oncologist. I hope this helps. Please don't try to be a lone island in your battle. You will need support now more than ever. Hugs!!

      about 4 years ago
    • preyes' Avatar
      preyes

      your right about getting the help i need my sister came over and we were talking about it my chemo is called cisplatin i went and get my medicine out for nausea i got medicines

      about 4 years ago
    • lchapman2000's Avatar
      lchapman2000

      Good!!! See you are getting prepared. Ask lots of questions at your appt. Remember to take a notebook. I promise you won't remember anything. Also, ask for copies of all of your labs or imaging reports and keep them. Tell your doctor that you are documenting your journey and want to keep everything. I am available anytime. Let me know if you need someone to talk to or vent to. Trust me, I have been there.

      about 4 years ago
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    lchapman2000 started following

    User: carm

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    lchapman2000 asked a questionEndometrial (Uterine) Cancer

    Questions about questions/answers

    11 answers
    • AlizaMLS's Avatar
      AlizaMLS

      Hi lcapman2000,

      I'm Aliza, a BC pt and Medical Librarian who offers my services here on this site and elsewhere. I offer advice (usually non-medical [Librarians have a code of ethics not to provide medical information to patients; that's regarded as practicing medicine without a license and is more or less illegal]). I do offer referrals to doctors, hospitals. institutions, agencies, etc. and research when required or requested.

      I think it's critical that each question on this site be answered with compassion and empathy. and sometimes even humor, when appropriate. As someone who's in a field related to allied health (not in allied health), I do not have the authority to have a say (much less any say) over anyone's diagnosis. On this site, truly Carm is the only one qualified to do so!

      While I may be able to research items for someone who requests them (medical or otherwise), I try to do so with compassion and empathy, because I remember very well the shock I felt when I found out I had cancer and I certainly wouldn't want to ever think I could have been the cause of someone else's distress.

      On this site, compassion and empathy are key. If you want accuracy, you should be asking if you can sneak a peek at peer reviewed journals in Oncology (under your specific illness). That's not what this site is about!

      Wishing you Well,
      AlizaMLS

      about 4 years ago
    • lchapman2000's Avatar
      lchapman2000

      Thank you all for your answers. I feel that this site is valuable in that we can support one another as we are going through the journey together. I feel that it is essential to be empathetic and compassionate when responding as we never know just how our answers will impact the poster. Many times, people find sites like these when they feel they have no place to turn and need the emotional support. Although we can share experiences, I don't feel that this site is best utilized for medical advice. That is what our trained medical teams are for. This is why we pay them...and pay them well I might add. They have gone to school and studied to be able to treat us. I just wanted to see how everyone else felt about the site. And yes, we are blessed to have Carm on this site as she is truly knowledgeable and an asset in our journeys.

      about 4 years ago
    • gwendolyn's Avatar
      gwendolyn

      There is value in shared information, but shared information delivered with a dose of sincere empathy is truly invaluable.

      about 4 years ago
  • lchapman2000's Avatar

    lchapman2000 wrote on nancyjac's wall

    I am confused. You post answers to everyone's questions as if you seem to know it all. Now suddenly you post an answer on mariegiancarlo's question that is just plain rude and indicating you are not an oncologist. Wow...finally you agree you don't know it all!! She is obviously suffering and in a lot of pain. I would think that you would realize that this site is for SUPPORT for people dealing with cancer. If you cannot offer that to others than why are you here? I only answer questions that I feel I can relate to and have experiences with; however, you seem to comment on EVERYTHING. Do you work in the healthcare industry? If not, then perhaps you should stick to what you know and have experienced...breast cancer. If you have not experienced the pain of a brain tumor then you could probably not fathom what this person is going through and should not respond in that way. I think you should really try to practice empathy for others. I am sorry but I have sat by as long as I could and watch you post questionable and/or rude responses to others. My mom always told me that if you couldn't say something nice then just don't speak. And then there is the Golden Rule...Do unto others as you would have them do unto you. I don't think you would want to be treated the way you are treating others on here. You make them feel bad for asking questions. You give invalid advice. Please think before you respond. You shouldn't respond if you have no experience or basis of understanding or if you simply cannot be nice. Just my two cents. Have a good evening.