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    GregP_WN wrote on LeeWalker's wall

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  • LeeWalker's Avatar

    LeeWalker started following

  • LeeWalker's Avatar

    LeeWalker asked a questionLeukemia

    Port removal after 6 months of remission

    12 answers
    • Jalemans' Avatar

      My onc said it was up to me. Having to go in to get it flushed was inconvenient & then I had an issue with the line & had to have it out. They offered to replace it but told me no issue having a new one put in if it became necessary. So, I just had it removed.

      3 days ago
    • Ashera's Avatar

      My port was very painful - from the beginning - Was told it was 'resting' on a nerve. I had it in for 15 months - as I had to have one year of Herceptin even after the 6 rounds of big chemo was completed. I could not wait...to get that out of my chest - and told my surgeon if he didn't do it soon - I would take a butter knife and do it myself! He listened. Other people I know didn't even know they had a port. But mine stayed painful...

      3 days ago
    • kalindria's Avatar

      I was about to have my port removed after 2.5 years when I had a recurrence. Now I think I'll just keep it unless there's a reason to remove it.

      about 21 hours ago
  • LeeWalker's Avatar

    LeeWalker shared an experience

    Decision Point (I have been in remission for 6 months and my Dr. thinks it is a good time to take the port out, or I could wait three more months.): I hear that leaving the port in that sometimes infections can occur and blood clots. My Chemo treatments went very well. I was Stage IV. Should I take the port out which the nurse and Dr. think is best.

    1 Comment
    • mja511's Avatar

      I, too, have CLL (with P17 depletion). I decided from the beginning to not get a port, and went through my chemo sessions without one. Besides the risk of infection, I didn't want to be reminded of my situation. My advice to you is to do what you feel comfortable with - control the things that you have control of, such as removing the port - or not. Glad everything went well - and enjoy everyday!!!

      3 days ago
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    LeeWalker started following

    User: GregP_WN

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    DaveWaz wrote on LeeWalker's wall

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