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    GregP_WN wrote on LeeWalker's wall

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  • LeeWalker's Avatar

    LeeWalker started following

  • LeeWalker's Avatar

    LeeWalker asked a questionLeukemia

    Port removal after 6 months of remission

    12 answers
    • Jalemans' Avatar
      Jalemans

      My onc said it was up to me. Having to go in to get it flushed was inconvenient & then I had an issue with the line & had to have it out. They offered to replace it but told me no issue having a new one put in if it became necessary. So, I just had it removed.

      3 days ago
    • Ashera's Avatar
      Ashera

      My port was very painful - from the beginning - Was told it was 'resting' on a nerve. I had it in for 15 months - as I had to have one year of Herceptin even after the 6 rounds of big chemo was completed. I could not wait...to get that out of my chest - and told my surgeon if he didn't do it soon - I would take a butter knife and do it myself! He listened. Other people I know didn't even know they had a port. But mine stayed painful...

      3 days ago
    • kalindria's Avatar
      kalindria

      I was about to have my port removed after 2.5 years when I had a recurrence. Now I think I'll just keep it unless there's a reason to remove it.

      about 21 hours ago
  • LeeWalker's Avatar

    LeeWalker shared an experience

    Decision Point (I have been in remission for 6 months and my Dr. thinks it is a good time to take the port out, or I could wait three more months.): I hear that leaving the port in that sometimes infections can occur and blood clots. My Chemo treatments went very well. I was Stage IV. Should I take the port out which the nurse and Dr. think is best.

    1 Comment
    • mja511's Avatar
      mja511

      I, too, have CLL (with P17 depletion). I decided from the beginning to not get a port, and went through my chemo sessions without one. Besides the risk of infection, I didn't want to be reminded of my situation. My advice to you is to do what you feel comfortable with - control the things that you have control of, such as removing the port - or not. Glad everything went well - and enjoy everyday!!!

      3 days ago
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    User: GregP_WN

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    DaveWaz wrote on LeeWalker's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

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