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    lepetite started following

    User: NETsurvivor

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    lepetite posted an update

    still hanging in there! diagnosed on 4-3-13 with pancreatic cancer and have been taking shots every 30 days. next month we will see if the shots have helped shrink the cancer in the liver and pancreas.

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    • GregP_WN's Avatar
      GregP_WN

      Hang in there and we wish you luck!

      over 3 years ago
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    lepetite started following

    User: Gizzy04

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    lepetite started following

    User: Beeps

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    lepetite wrote on Beeps's wall

    thank you so much for the information, you have made my day! I also think that leaning on faith and God is what its about! I will keep you in my prayers, God Bless!

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    lepetite wrote on FreeBird's wall

    thank you for your help! I was told that he has a slow growing cancer and its at the tail of the pancreas, I think they call it islet tumors and one is the size of a golf ball. He was also told that he has five spots on his liver. I am by no means a doctor, but I just could not get pass the doctor telling him they will wait and see and in the mean time we will give you a shot (chemo) that will help. He lives in the Atlanta area and there are many doctors and I know they are human and can make mistakes too. It just does not sound good to me, i feel like he needs to take a more aggressive line of action. I just don't know! I feel helpless for him.

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    • Beeps' Avatar
      Beeps

      Good morning lepetite- from what you have written about your friend, it sounds like I have the same diagnosis. Mine was discovered in Feb.'12. I get the shot each 21 days. It's been over a year and my MRI's , which I get about each 3-4 months, show almost no growth. I see a Dr, in the Atlanta area, but I'm signed up at the Moffitt Cancer Ctr in Tampa for any clinical trials that might be suited to my cancer. I've been told dozens of times... If your going to have pancreatic cancer, this is the kind you want!?... Weird to hear... It's the kind Steve Jobs had, etc...
      For me, there are no surgical procedures that apply, it's too far down the road. There is no cure at this time. So, those things are Grimm- but- its been a year and I'm doing fine! I've had very few symptoms- they discovered mine when I had my appendix removed. I handle the shot well, as most folks do. My main difficulty is fatigue, which is a side effect of the shot and just dealing with cancer. I do get back pain and side pain- but it's very manageable for me with pain killers. Thankfully, I don't need them all the time? My symptoms stir up with stress and "over-doing" physically. The shot is a real doozy! It hurts and then your hip hurts for several days.
      I try to measure out my activities to not push too hard, I take a nap everyday, and I try to manage stress the best I can.
      I don't know if your friend is a person of faith, but if so.... Encourage your friend to lean into that faith with all they've got! Pray a lot!
      It takes quite awhile for the shock of the diagnosis to wear off... Your entire perspective has to make a huge shift and this took me months... In fact- not so sure I'm 'there' yet!
      Very best wishes on the journey! Just be available for your friend, expect some emotional roller coastering, a good hand holder is priceless! When I was first diagnosed I was blessed to be showered with love and prayers from many, many people... As time has passed, the list of folks has dwindled- don't be a friend that sort of falls away... Hang in there for the duration...and it will most likely be years!

      about 4 years ago