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    Lesl wrote on Metta's wall

    hello, I'm in MA too (Pepperell, near Groton) - whereabouts in MA too. I have recently been diagnosed with Ovarian and subsequently secondary cancer. Currently undergoing Chemo (4th weekly out of 18 so far). I'm trying to find other patients within my local area.

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    Lesl wrote on Shedriver1's wall

    hello,
    I've just joined this site and am quite close to you in Pepperell (Near Groton, MA). I too have been looking for the support from other patients and real people (not just online data - that's way too depressing!). I am very recently diagnosed (Nov) and am currently 4 rounds into my Chemotherapy. Hope to hear from you. Lesl

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    Lesl shared an experience

    Drug or Chemo Therapy (Chemotherapy): Weekly Chemo in 3 weekly cycles: Week 1: Taxol & Carboplatin. Weeks 2 Taxol only.

  • Lesl's Avatar

    Lesl shared an experience

    Procedure or Surgery (Radical hysterectomy): Wed, Nov 16th: Went to a walk-in clinic with low abdominal pain - (thinking I had Gastroenteritis or maybe even was constipated). Staff thought I may have either Colitis or Diverticulitis and suggested I go to a larger ER for further tests and possibly IV antibiotics and I should then get home by approx midnight.
    Drove myself to Lowell General hospital and sat for 3 1/2 in the waiting area waiting to be seen. 10:30pm: Underwent numerous physical examinations by various doctors and residents, sent for 2 separate CAT scans and in the early hours of the morning then had internal & external ultrasounds. Husband was away on business in Texas when I had the diagnosis broke to me. You have a Ovarian Cancer!!! and need a Emergency Surgery and although we could do that here, we believe you will get a much better outcome if we can get a surgeon to take you as soon as possible in Boston. OMG cancer!!
    Thurs, Nov 17th: husband is trying to get flights from Dallas to Boston whilst I'm being transferred to Tufts Medical and admitted to the OB Gyn & Oncology ward. Husband arrives having flown via various different airports to get back.
    Fri, Nov 18th. Surgeon moves various commitments to carry out my surgery which then consisted of: Full radical Hysterectomy, (Uterus, tubes, ovaries, cervix and part bowel) and a Full debulking.
    Two large tumors found - Double fist sized one on the right (Serous Carcinoma) type as expected, plus a single fist-sized one on the left ("Carminosarcoma" - apparently much more rare) plus 20+ Small Serous ones floating around in my uterus.
    CA125 indicator was showing at "1030" pre-surgery (normal range is 20-35) post-surgery dropped to 225.

    Initually, following surgery was diagnosed as a Stage 2. Then underwent a PET scan (two weeks later) & images showed I had lit up like a Christmas tree (not good) with secondary tumours located in Chest nodes, plus 2 on the Spleen, 1 on the Colon plus a large, walnut-sized one in my Left groin (never noticed it before). All this took me now to Stage 4. Initially, was advised I'd be having three weekly Chemo consisting of Taxol & Carboplatin. However, following the PETscan results, this was subsequently upped to a much more aggressive approach with a Weekly regime consisting of:

    Week 1: the duo (Taxol & Carboplatin) on followed by 2 weeks of just Taxol. Week 4 reverts to the double infusion again.
    Had some bad reaction in the veins on the third infusion of Taxol and so had a chest port fitted - making everything much easier.
    Fri Jan 6th:
    Between week 3 and week 4, saw Oncologist again for a full exam and the tumour in my groin has gone from size of two finger wide to a 1 finger width (after just 3 treatments). I thought it was either my wishful thinking or imagination but I was utterly delighted to have it confirmed and I literally danced my way out of the hospital and back to my car! First bit of positive news since this whole thing started and I was elated!!!

    Sun, Jan 8th
    First signs that my hair is now starting to fall out in pretty large clumps and although you're advised that this is going to happen, it's still quite shocking experience when it actually does!

    But I'm well prepared and have bought 'beanies, Hats, two proper natural-looking wigs' plus a brightly coloured fun one! I'm going to enjoy this as much as I can and turn it into a very positive experience!

    2 Comments
    • Carol-Charlie's Avatar
      Carol-Charlie

      So Glad you're doing well.... You can do this.... remember Four is just a number...I was Stage IV also, in 2006. After surgery I asked how long I had... Gynecologic Oncologist Surgeon.... replied "Six Months"..... I had that 39 pound tumor removed and he'd scraped all the cancer he could see from my intestines, and urethra.... He upgraded me to Stage III I was given the same chemo as you.... I've gained more grandchildren and five Great Grandchildren... Christmas is crazy.... God bless you, you can do this too.

      9 months ago
    • Mommoo50's Avatar
      Mommoo50

      My goodness! Thank God you listened to your body and hightailed it to the ER. I am amazed and very impressed by your medical team and the fact that they took your symptoms seriously and got you the tests and referrals you needed. I am sure you know its not that way for many. Its a fight to get medical to listen to us. I wish you luck and am so happy you are seeing positive results.

      My stage 3b fallopian Tube cancer was discovered when i went to my Dr. with an umbilical hernia complaint. Surgery for that resulted in the discovery of tumors in my Omentum and we were off from there!

      Don't worry about the hair. I loved being bald. My daughters and grandsons had a ball spray painting my hair clumps that were left and eventually shaving my head. It was so freeing and also invited conversation about OV with the people who did ask my about my hair loss. I am 10 months post chemo and doing well. Big virtual hugs!

      9 months ago
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