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    Leukemia_WN posted an update

    One of our partners is looking for patients with acute myeloid leukemia willing to participate in a 60-minute telephone interview. I thought you or someone you know might be interested in participating.

    Participants who qualify, and complete the interview, will receive a $125 Amazon gift card.

    http://survey.quickquest.net/TakeSurvey.asp?PageNumber=1&SurveyID=6LJ5874M683KK2

    Just click the link above to see if you will qualify for the survey. If anyone has any questions feel free to message me.
    GregP_WN

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    Leukemia_WN asked a questionLeukemia

    Has anyone experienced this?

    5 answers
    • SueRae1's Avatar
      SueRae1

      Many chemo drugs impact the bone marrow's ability to create Red, White and Platelet cells. I have had issues with all three. In fact issues with my platelet count, my oncologist is taking off of Carboplatin. I bottomed out before (23) and it took weeks to get up to 97 two weeks ago. My count was 50 last week, and 46 today. There are drugs and treatments then take care of the red and white blood cell issues, unfortunately nothing for platelets, if you get bellow 10 they will give you a transfusion, but it last only 3 days.

      over 4 years ago
    • SueRae1's Avatar
      SueRae1

      BTW until December my blood counts always recovered within two weeks.

      over 4 years ago
    • TrueTiger's Avatar
      TrueTiger

      Hi Leukemia_WN. What type of leukemia do you have? By blood count still at 0, dId you mean your Neutrophils? Mine are at or near 0 for the last several months through few treatments that didn't seem to work for me. I have T-Cell LGL. Hanging in there and working diligently with my doctors on the next options. I wish you all the best.

      over 4 years ago
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    Leukemia_WN asked a questionLeukemia

    How do I cope as a caregiver??

    6 answers
    • SueRae1's Avatar
      SueRae1

      Your husband is having a normal emotional reaction, and needs to talk to someone about the emotional impact having cancer is having on him. You may also want to speak to someone because being a caregiver is hard, in many respects harder then being a patient.

      Your DH had very optimistic expectations of how long it would take for chemo to work. Perhaps you can sit down with his oncologist and talk about his treatment and possible time frames. S/he can also recommend therapists who specialize in treating cancer patients and/or their caregivers.

      You should try to build a support system for yourself, otherwise you will burn out in no time, as well as you husband.

      over 4 years ago
    • CancerwithJoy's Avatar
      CancerwithJoy

      Hi! I'd like to help you with this. Have you heard of Imerman Angels? I volunteer with them & they're one of many helpful resources I know of. They offer FREE 1:1 Support . . . for Caregivers too! Maybe you could sign up with them & request some support so you could talk to someone? Here's the link to check it out & you'd say Request a Caregiver Mentor. I certainly hope this helps you!! http://www.imermanangels.org/get-cancer-support.php

      over 4 years ago
    • CancerwithJoy's Avatar
      CancerwithJoy

      Oops, sorry, I hit answer too soon! I also wanted to tell you to please check out http://www.caregivers4cancer.com I hope these help you out!!

      over 4 years ago