• Lili's Avatar

    Lili shared an experience

    Procedure or Surgery (I am waiting to have 2nd surgery): Last time I was asking if anyone went to Mayo Clinic, MN, to seek medical help and did not find anyone who went there. Since I have been there and just want to share my experience.
    After my 1st surgery locally last year, I decided to go to Mayo Clinic. I was immediately assigned with an endocrinologist who acted as my case coordinator. The first time when I was there in December, I met the endo and talked with him. He seemed to be knowledgeable and understood our situation (travel from another state, cannot stay long etc). The Pathologist reconfirmed the results of bioposy slides I brought with me. So the endo said that I need 2nd surgery and started to arrange with a surgeon. He called the surgeon in the followup visit next day and discussed with the surgeon about my surgery and was told the surgery cannot happen until 6 weeks later. So I had an appointment in January to meet the surgeon. The endo prescribed Cytomel for me to take in between.
    On January 7, 2013 I went to Mayo Clinic and met the endo again and first time with surgeon. In the meeting with the surgeon I was told he cannot operate on the same scar until it is fully healed. That was totally a surprise as I was prepared to have the 2nd surgery this time! After talking with the endo again, he was aware of the miscommunication and offered to reimburse some of our expenses.
    Overall, in the two trips to Mayo Clinic, I was impressed with their services. It is very convenient. Everything we had to do (lab, ultrasound, vocal chord checkup, billing, patient relationship etc) is within two connected buildings. The surgeon came to endocrinology department to meet with us. Staffs (medical and business) are nice, listening to our concerns and willing to work with us.

  • Lili's Avatar
  • Lili's Avatar

    Lili asked a questionThyroid Cancer

    I was recently diagnosed with Hurthle cell carcinoma. My current dr wants me to have a surgery to remove my left thyroid lobe next week.

    16 answers
    • Tamy's Avatar
      Tamy

      Hi Lilli, I too have HCC. At first it was called benign by Mayo, fast forward a year plus and I went MDAnderson, just was bugging and wanted the exports on Medullary Thyca on board. Well Dr Sherman re did the pathology and found out I did/do have HCC. So in my opinion MDAnderson is THE place. I live north of ya in Nebraska so, a little bit of a trip but well worth it. Hope this helps.

      about 3 years ago
    • Tamy's Avatar
      Tamy

      Was wondering what you ever did Lilli

      about 3 years ago
    • Lili's Avatar
      Lili

      I had my second surgery done in Mayo last July and have been on Levothyroxine since. In January I went back to Mayo for after surgery checkup and everything was fine according to the dr there. After my second surgery, my menstruation was messed up (severe pain) mainly because of my body's reaction to the removal of thyroid (that is my personal opinion, because my endocrinologist in Mayo did not think there was a correlation). Anyway, I am getting better and better with my menstruation after 4 or 5 months and my body is recovering gradually. Thanks for your information about MDAnderson.

      about 3 years ago
  • Lili's Avatar

    Lili shared an experience

    Procedure or Surgery (Surgery): I had my right thyroid gland removed on Nov 14, 2012. The on site biopsy said it was benign. Then the lab result said it is Hurthle cell carcinoma. The dr wants to open up the wound and remove the left lobe.

  • Lili's Avatar

    Lili started following

    User: GregP_WN