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    Lilly721 asked a questionNon-Hodgkin Lymphoma (NHL)

    Just diagnosed w/lymphoma. Dr"s recommending regimen w/ Rituxan & Treanda. So very scared. Not my first cancer but 1st chemo. Any advise.

    5 answers
    • AmyC's Avatar

      I am currently in treatment for Large B Cell NHL. I have had Rituxan but not Treanda. I received Rituxan with RCHOP and with RICE treatments with no side effects (with the Rituxan) but I did recieve benadryl and tylenol as a premed for the Rituxan. So that may have been my magic. :) My doctor also said the type I have is curable so I'm doing everything he tells me. I'm not there yet but I'm banking on getting there! I wish you the best of luck with everything!

      about 4 years ago
    • jhale17's Avatar

      My fourth occurrence of Diffuse Large B cell NHL started Dec 29, 2011. The cancer was located in lymph nodes of my abdomen. The treatment used was six treatments of Treanda+R. I completed this treatment six month ago. Results: remission.

      I have had CHOP, RICE and EPOCH+R chemo treatments going back twelve years. The Treanda+R has by far been the easiest for me. A friend of mine had this same treatment one year before me and is doing well now. His was slow growing and mine was aggressive and we have both obtained remission.

      Everyone is different so there is a risk for everyone starting a new regime. In talking with my doctor and nurse advocate they say patients are having good results with Treanda+R. This chemo has been around thirty years in Russia and recently became available in the USA and is well established showing a good track record.

      With previous treatments I lost hair all over my body. Treanda resulted in only a little thinning of my hair.

      Here is the drill for Treanda+R outpatient treatment.

      You sign in at the doctor’s office; then wait to be taken to the infusion room. Once there a nurse’s aide may take your vitals; temperature, oxygen level on your finger tip, pulse, blood pressure and ask how you are feeling.

      Most doctors’ offices have a separate infusion area with recliners and blankets for your comfort. You will be able to walk with your IV pole to the restroom or the vending machine, as needed. You may snack, read or bring in a portable video player or use your cell phone if you like. They usually have a TV running some station.

      The nurse will prep you putting in an IV in your arm. This is the only stick you should get and the nurses are very good at this.

      You will probably get the Rituxan first and there is prep for that. I received two Tylenol tablets with water and a small IV bag with Benadryl in it. This infusion is quick -- like fifteen minutes. Then that IV bag is replaced with the Rituxan bag which will be administered slowly at first and then increased later. This will take around one hour. The Benadryl may make you sleepy. I have had Rituxan fourteen times and with no side effects.

      Then the prep for Treanda is started. It is another little IV bag that takes about fifteen minutes. A portion of this bag contains steroids. This is to help your body deal with the chemo. I just love this as they provide what I call a false feeling of wellbeing that gave me good dividends when I got home. In fact, after my third treatment I took a trip for four days out of state. I did take some rest time on some days but enjoyed getting away.

      Your IV site will be removed and a dressing placed on it and you will be released to go home. I drove myself home as there were few notable side effects. For me treatments were four weeks apart.

      I believe everyone is inconvenienced to some degree by chemo; just remember there are a limited number of treatments. When I asked my doctor twelve years ago, “what happens after my last chemo treatment?” his reply was: “Every week just gets better and better.” That has been the way for me for the four occurrences I have be though.

      I am holding good thoughts for your treatments and their successful results.

      about 4 years ago
    • Harry's Avatar

      Oh. I didn't realize. Treanda is just another name for Bendamustine. I've had that. It is a very easy drug to take. No side effects for me.

      It was developed in East Germany.

      about 4 years ago
  • Lilly721's Avatar

    Lilly721 shared an experience

    Decision Point (to treat or not): Not my first cancer but first chemo. Had soft tissue, thyroid, lung cancers. Now dyagnosed w/lymphoma & need to make decision about treatment. Dr. recommends chemo w/ Rituxan & Treanda. Oncologist is local but my daughter wants 2nd opinion @ Sloan-Kettering. Don't know what to do.

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