• Linda2010's Avatar

    Linda2010 started following

    User: CancerNews

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    Linda2010 wrote on YQM's wall

    I could ramble on and on too. Like you I get so frustrated with the medicine. His nausea is the generic for zofran. The doctor ordered to take every 8 hours as needed. They only will give me 8 pills at a time. I have to go every other day to pick up his pills. My husband is diabetic, has parkinson's and of course the pancreatic cancer. His CT scans show no metastatsis in the area of the pancreas or colon. His has gone to the lung. I get so frustrated with the CT scans. The one CT before the last said he had a soft tissue mass in the abdomen. The next CT scan said there was no growth. After thinking about it I thought maybe that mass could be from his inguinal hernia repair. Sure enough that is what it was. He still gets around on his own by is getting confused. He was in REhab for 7 weeks at the beginning of the year because of a UTI. One good thing is he does have an appetite. May I ask where you live.

    1 Comment
    • YQM's Avatar
      YQM

      We live in Northern Virginia. Yes the pharmacy/pills situation is so much better with Hospice. They send them via fedex to the house. We use the Hospice with the hospital here in town, it was a referral from the oncologist. They are on call 24/7 so if something happens or I am concerned, I can call a nurse on call. They usually have an evaluation meeting before they start hospice, so meet with them and ask all your questions... you can always bow out if it does not work. Signing up for Hospice does not mean you are giving up... it just means you need more 1:1 care and help.

      over 3 years ago
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    Linda2010 wrote on YQM's wall

    Thanks so much for your comment. How is your husband doing now? It is so nice to hear from someone else. Did your husband get hiccups?

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    • YQM's Avatar
      YQM

      Yes he had hiccups... He has to take meds to keep them to stop. They drive him crazy. He even has them in his sleep (which makes me a little crazy).

      He is doing ok. Our biggest issue is his cancer moved to his bones, and from what I have read bone mets is incredibly painful. He is now on a morphine pump to help with the pain.

      We have good days we cherish and bad days we get thru. We had a great Christmas Eve where he felt good enough to go to Christmas Eve candlelight service, and even Christmas Morning. We went to a friends house (family out of town) where he slept most of the day. They next day he awoke to swollen feet and ankles leaking fluid. Evidently this is due to his tumor pressure (a lot I do not get).. but does not allow his body to get rid of the fluid the normal way so pools to his feet/ankles. He was fairly active before this, so hoping this passes.

      If I have learned one thing, it is the progression of the disease is different for everyone. I have seen people post about someone diagnosed and then died within weeks, and then people who are surviving years.

      Again, Hospice has been my life saver. I have gone to the pharmacy who won't fill a prescription because of authorization, or they think the quantity is too high... and I would scream/cry "My husband has cancer and is in pain, just give him whatever the doctor asks please" The emotional roller coaster of just the meds was more then I could deal.... so again Hospice saved me!

      over 3 years ago
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    Linda2010 posted an update

    It has been a few months since I have posted on here. After My last post my husband was put on xeloda for about 3 months. Just had a recent CT scan and it showed slight growth in 2 of the lung nodules but the one that was treated with RFA stayed the same. The other two nodules they are saying one could be primary lung and the other metastatic. One is well circumscribed and the other is spiculated. The doctor looked at us and said he feels we should stop chemo. The next step would be something more toxic and would probably kill him before the cancer. This is the time we all dread and keep searching for something else. He asked if we wanted Hospice but I guess I am not ready to go there yet. He wants to see him very two weeks. I guess he thinks he will go downhill pretty quickly. We are going today and my husband is doing good okay. He has no cough or any symptoms of the lung cancer. Hope everyone has a good New Year.

    4 Comments
    • YQM's Avatar
      YQM

      Linda:

      Doctor told my husband his survival rate was 6 months without more chemo. My husband chose quality of life, due to the severe reaction to chemo. That was a year ago. My husband did go on hospice, but not 'to die' but to help with the pain management (hospice is great at this). So he is what they call Pallative/Hospice care. Consider it, I have been incredibly thankful we went the Hospice route. My husband has fewer doctors appts, since the nurse comes to the home (as does a message therapist), the drugs are delivered to the house (with no copay) and it just seems to make life easier. just my two cents.

      over 3 years ago
    • YQM's Avatar
      YQM

      I am sorry I ran on and on... I seem to want to spill my guts with anyone who asks...

      over 3 years ago
    • pcsurvivor's Avatar
      pcsurvivor

      Just wanted to say hello and share a story..my mom was diagnosed with lung cancer. The doctors gave her six months at most. The only treatment she took was radiation. She lived six WONDERFUL quality YEARS! Just another reinforcement that only God knows, and there are miracles all around us! For about a year we did have Hospice visit her three times a week and they were awesome! It helped my husband and me so much; just the little things. So many people think of Hospice as "giving in" or "giving up" but I learned that it's just not so.
      I'll be thinking of you, and praying for you and your family.
      Donna

      over 3 years ago
  • Linda2010's Avatar

    Linda2010 shared an experience

    Drug or Chemo Therapy

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    Linda2010 wrote on JMS's wall

    Thank you so much. The doctors office is working on this right now. I really appreciate your kind offer. I will let you know. It is so hard to stay strong but I know we have to. Keep in touch

    1 Comment
    • JMS's Avatar
      JMS

      Ok. I hope it works out, but, if not, just let me know if I can be of help. My best to you all, JMS

      about 4 years ago