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    Lindy wrote on Lyssa's wall

    I had a massive infection that started in the area of the lymphadenectomy, I had additional surgery that left me with a deep ugly scar, lots of antibiotics to get me to chemo. I am lucky in that I am still here. I did not have reconstruction. Reconstruction would have been ideal, feelings of wholeness addressed but do to extensive second surgery that would require moving a chunk of me to my chest I felt it best to just leave my poor chest as is. We are the cancer patients, we are struggling to survive, to be good patients, to receive and share very personal information. I am sorry your relationships with your care team did not give you a needed sense of being heard.

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    Lindy wrote on Believe8053's wall

    Revive Therapeutics Signs Exclusive Worldwide License Agreement For Medicinal Mushroom Ganoderma Lucidum To Treat Cancer
    In Clinical Studies News by Barbara JacobyAugust 30, 2021, that is the article I was sharing. I follow this blog because she posts the best information on research. I did a vaccine trial with the University of Washington Tumor Group, can't say enough good things about them. If one can find housing help trials can be a way to add to the power of the protocol. Healthwell is a fabulous nonprofit, I was underinsured when I was going through care, they helped with my chemo copay. https://www.healthwellfoundation.org/about/healthwell-news/newsletter/

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    Lindy wrote on Believe8053's wall

    I am sorry you are having to deal with this again, hoping you have much support & an excellent care team. I follow research on triple negative for a family member. Much newer research, seems there needs to be a special assistant to gather all that an ascertain what is best for you. We are here, use us as you need.

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    Question: Arm Update