• Lirasgirl33's Avatar

    Lirasgirl33 shared an experience

    Drug or Chemo Therapy (Chemotherapy): 7/31/15- I went in for Dose #6 of Irinotecan. I was told to arrive at 11:30am. I arrived at 11:17 am. Early for once. My kids were with me and we waited almost 2 hours for them to call us in. I was extremely frustrated, tired, and fatigued.

    Once they called me in, I was put in a small cubicle type area with 2 other patients and their companions. I felt claustrophobic. They gave me all the pre chemo meds via IV and I started feeling anxious, restless and emotional. I felt trapped in there it was horrible. I couldn't wait to leave.

    I was so heavily medicated after treatment that I had to stop driving and park somewhere to rest and close my eyes for a bit. It was scary. I was finally able to make it home. The whole treatment, waiting, fatigue, and not to mention the extreme heat we've been having here in LA made for a horrible time. Once I got home, I went straight to bed and slept. I slept for a good 4 1/2 hours. Thank God. I really needed that. I woke up around 9:30 pm and couldn't get back to sleep. I finally went to sleep around 5 am. I woke up today at 9:30 am. It has been a very tiring start to my weekend. Hopefully I get all my energy and strength back because I really want to go camping again with my family this coming week. Our destination, Yosemite National Park. I'm praying I'll be ok to go.

    1 Comment
    • NanaL's Avatar
      NanaL

      So sorry you had such a bad experience with your treatment. Sounds like they were overbooked! Glad to hear you've been camping and spending quality time with your family. You are in my prayers! Stay rested and hydrated in this heat. Take care and it was so good to hear from you!! Hugs, Sharon

      about 6 hours ago
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    Lirasgirl33 shared a photo

    Wall_p1010056

    Last camping picture of my kids and I. This was on our way home. We stopped at a Vista Point to snap a picture of the lake before we left.

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    Lirasgirl33 shared a photo

    Wall_p1000601

    Our little home away from home. The red tent is ours. :)

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    Lirasgirl33 shared a photo

    Wall_p1010024

    7/26-7/28 A picture of my best friend and I. We camped at Silverwood Lake SRA. This was our 2nd time camping here. It was absolutely wonderful. Some much needed rest and relaxation. I didn't swim because of my low WBC's.

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    • LiveWithCancer's Avatar
      LiveWithCancer

      Just gorgeous! I am so glad you were able to go and have a great time!

      about 9 hours ago
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    Lirasgirl33 shared a photo

    Wall_p1000454

    7/25/15-This was one of the beautiful view during our morning hike. :) Hello sunshine!

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    Lirasgirl33 shared a photo

    Wall_p1000443

    7/25/15- I was supposed to have chemo two days ago. Unfortunately blood counts were low and we had to reschedule it for next week. Which to me was sort of a blessing in disguise because I wanted to go on a hike and also go camping this weekend. Recovering from chemo wouldn't have allowed me to.

    So I went on that hike after all, a beginner/intermediate hike to a waterfall with our church youth group. I definitely couldn't keep up with all the youth but I made it to the waterfall and that is what counts. :)

    This was another one of those times when I had to listen to my body and rest, drink water, and rest some more before continuing the hike. I could feel my body asking me to stop. My feet also started to cramp up but thankfully it went away. I can't help it, it frustrates me sometimes to feel and be so limited. I started at the front of the group and little by little I ended all the way in the back. It's ok though, thankfully my cousin kept me company. :) I really enjoyed it.

    2 Comments
    • LiveWithCancer's Avatar
      LiveWithCancer

      Where did you go camping? It looks like a blast and i am so glad you got to go. Hoping and praying your blood counts will be good enough for a treatment next week.

      about 15 hours ago
    • NanaL's Avatar
      NanaL

      You're awesome!! I know it's frustrating, but think of all you have overcome!!

      about 6 hours ago